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Hi, I was diagnosed with Ewing's-like sarcoma with cic dux4 fusion last year and have recently completed 9 cycles of VDC/IE chemo and surgery. The complete Ewing's chemo protocol is 14 cycles of chemo however because my scans and pathology results of...
Just reaching out for guidance and support. In June my husband went to the doctors with a round solid lump on his forearm, he then waited 6mths for a ultrasound and the referred for MRI which was inconclusive so he was referred to a sarcoma centre, after...
Hello everyone and first of all I just want to say how sorry I am that your lives have been turned upside down by this horrible and rare disease. I am 36 years old with a long awaited 4-month old baby and currently besides myself with worry. I discovered...
Hi, I've recently been diagnosed with Leiomyosarcoma following a cyst removal that they thought was benign... it wasn't. Currently awaiting surgery on Monday for an oopharectomy and V-Y incision, as the diagnosis is so rare I have not been given any...
In preparation for my next operation (which this time is to remove my ovaries and cervix stump, which originally were left during a hysterectomy as they didn't know I had cancer) I'm wondering how other women experienced the effects of instant menopause...
So I'm due my CT scan, can't do 3 monthly MRIs due to claustrophobia. Nearly 2 years post op and feeling stressed. Best friend diagnosed recently with Breast Cancer in last couple of weeks and dealing with this is tough. She and I are fighters, but tonight...
I've recently been diagnosed with a GIST and been told I need a total stomach removal, then two years on targeted chemotherapy. I haven't been given any information really about what it is, but the first nurse to give me my biopsy results over the phone...
Hi it’s great to see a Sarcoma chat forum. I have had a very interesting relationship with my cancer but now I’m needing some help on dealing with the latest problems. In 2012 I was diagnosed with a myoepithelial carcinoma sarcoma. The first person...
Hi all ... I'm new to the group and was diagnosed with low grade ESS in July 2020. Is there anyone in the group with the same diagnosis ? I find that being diagnosed with such a rare disease can be very lonely x
Hi I’m the beach This is the first time I am writing on this forum I thought it would help to hear from others going through similar. I was diagnosed in October 2020 with pleomorphic spindle cell sarcoma in thigh 15cm and since then things have...
