Hello everyone and first of all I just want to say how sorry I am that your lives have been turned upside down by this horrible and rare disease.
I am 36 years old with a long awaited 4-month old baby and currently besides myself with worry. I discovered a lump on my lower back which after long three months of investigation was confined a tumour in my gluteus muscle (just shy of under 5cm) but I don’t know which one yet. I am meeting a plastic surgeon next week but struggling to keep it together. Since November I have had an awful fatigue that just doesn’t budge with rest or sleep. To start with I thought it was down to having a newborn but we are sleeping much better now I get good 7 hours of sleep each day but my whole body feels like lead when I wake up and stays like this. I am also short of breath, have strange dizziness and noticed that the lump has grown quite quickly since end of November. All of this makes me so worried not just about the likely malignancy but also that it’s too advanced for treatment.
i am sorry I am posting here whilst still without diagnosis but I wondered whether I is possible to suffer from fatigue and it not being a late stage cancer?
Finally, I just wanted to say that my heart goes out to each and everyone on this forum. It’s so unfair
Hi KatBee
If we look at this page on fatigue we can see the huge range of things than can cause this.Just af single one of them anxiety took me out - and it is my wife with the cancer.
Lumps are very common, sarcoma quite rare. You are on just the right path to a diagnosis but they do take a dreadfully long time and many find it just about the hardest part of the journey - that unknown.
My wife's cancer is scattered throughout her lung - advanced but not untreatable, incurable but with chemotherapy her's has been rendered stable and now we live with cancer - and she is doing really well on that.
Hope some of that helps, for now try to take things one day at a time. Ring the helpline here if you need to talk to someone, we understand.
<<hugs>>
Steve
