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Hi, I've just learnt from my mum that she's been diagnosed with liposarcoma. She doesn't know the type yet, waiting for the results which she'll get next week. She asked me for support. She can't speak English so I'm writing on her behalf. She asks for...
I wasn't really sure which forum to post in, so I'm here, not really new. My husband was diagnosed with a rare but very aggressive retroperitenal sarcoma just over a year ago. Radiotherapy didn't work and surgery did remove a large tumour about the...
Good morning everyone! I have just found your forum and am desperate to share what's been going on for me, so I hope you'll forgive me if I splurge! But first, I'll share a bit about myself. I'm 73 and have a long and loving marriage (54 years!). I...
Hello, I'm completely new here and new to forums. In fact, I've already posted a similar message somewhere else on the forum but think I was meant to post it here. I'm a 50 year old Brit living in Italy. I had a full hysterectomy in 2020 for a 'presumed...
Hi all I was diagnosed with mpnst last September. Had a tumour in my thigh and soon after being diagnosed had 30x radiotherapy treatments, followed by surgery in early Feb of this year. In May, I found that I unfortunately had lung metastasis. After...
Good morning , mums having tests.Looks like Spindle cell neoplasia .Awaiting some more detailed biopsy results . Tumour is large in abdominal area. She has zero symptoms and is fir and healthy .Has anyone else had experience with this form of what seems...
Hi I have been told got soft tissue sarcoma in my thigh. I go in on Monday for my first op to have removed and gotta have a +/- vac bandage just wondering if anyone has a similar bandage.
Anyone with high grade ESS? I was just diagnosed yesterday, still in shock.. have no risk factors or any major symptoms except one day of spotting which warranted for d&c that revealed this diagnosis. Still waiting on ct scans etc..I am 10yrs into menopause...
To quickly recap: Following a trip out of my front door in early June, several things were identified on the CT scan of my torso at A&E. One of those turns out to be a potential GIST located in my duodenum. I have been put on the '28 day pathway' and...
hi all, my primary care doctor is referring me to a surgeon to remove my abdominal tumor and send it to pathology. she said that she was “extremely concerned” about my tumor due to all the symptoms i’m having, she thinks the tumor is causing them, and...
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