Back in 2017 i was diagnosed with a Pleomorphic Grade 3 Sarcoma in the upper thigh. back then it almost killed me. one point i was given 5 days to live. they took a 1.2kg tumor out of my leg, all the muscle from the left side of my thigh, 60% of the rest...
Hi everyone For 6 weeks I've been diagnosed with rare vaginal sarcoma. the tumor is growing & is inoperable. I was told that it hadn't spread however on Friday the dr told me they made a mistake & it has spread & is uncurable . I'm beside myself...
Newly diagnosed with recurrent low grade intimal Sarcoma of the heart. Just finished my first cycle of chemotherapy (and first experience with chemotherapy) to help shrink the mass before surgeons attempt to remove. I had a mass back in December 2023...
I have had Angio Sarcoma originally diagnosed Nov 2020 with recurrence December 2023. Currently NED getting 3 monthly CT surveillance scans. I am based in central Scotland.
Hello I’m new to this forum. I was diagnosed November 23 with Spindle sarcoma in right femur. Which I had removed via surgery in January 24 i also have matasisied tumors in my lungs. I’ve already received 6 months chemo as inpatient but now need more...
Hello everyone. My Husband suggested I join here as I'm full of questions. I have a sarcoma of my right knee just above and to the left of my knee cap. I am unsure what to do about working as I have a physical job, and following my 3 biopsies on wednesday...
Hi, I've just learnt from my mum that she's been diagnosed with liposarcoma. She doesn't know the type yet, waiting for the results which she'll get next week. She asked me for support. She can't speak English so I'm writing on her behalf. She asks for...
I wasn't really sure which forum to post in, so I'm here, not really new. My husband was diagnosed with a rare but very aggressive retroperitenal sarcoma just over a year ago. Radiotherapy didn't work and surgery did remove a large tumour about the...
Hello, I'm completely new here and new to forums. In fact, I've already posted a similar message somewhere else on the forum but think I was meant to post it here. I'm a 50 year old Brit living in Italy. I had a full hysterectomy in 2020 for a 'presumed...
Hi all I was diagnosed with mpnst last September. Had a tumour in my thigh and soon after being diagnosed had 30x radiotherapy treatments, followed by surgery in early Feb of this year. In May, I found that I unfortunately had lung metastasis. After...
