Recent diagnosis

  • 4 replies
  • 22 subscribers
  • 306 views

hi
I’ve just been diagnosed with Sarcoma skin cancer, I found a lump in my right breast a month ago, and they did a manograom, ultrasound and biopsy;  the lump is about 4cm the consultant said she was sure it was benign so it was a huge shock yesterday when I went back to be told it’s cancer.  I have NF1 which possess me at a greater risk of cancer,

I’m just praying it’s early stage I’m a single mum to a 2 year old and am so scared of not being here for him.  I have family like my mum and brothers but still I want to see him grow up.

i have aches  and pains in my legs and hips as well and while I thought it was just a strain I’m obviously now worried. 

  • Hi  

    Sorry to read about this, hopefully it has been caught early. We have some information on soft tissue sarcoma here and there is more on the sarcoma uk site.

    My wife has Leiomyosarcoma, she was diagnosed over 10 years ago, she had two different types of chemotherapy and the second managed to make her cancer stable - she is in good health and now we live with cancer as our everyday norm. 

    It is easy to think that everything we get it related to the cancer but realistically we all get all kinds of things. Really worth mentioning to the oncology team just in case they are related. 

    <<hugs>>

    Steve

    Community Champion Badge

  • Hi Steve 

    I hope your wife is doing well.

    im feeling like the lump is growing, I also have a burning sensation under my armpit which I hope is from shaving. Its so hard not to worry while you wait for all the scans 

  • I am wondering how you are now.  I am waiting to see the sarcoma team and discuss exactly what I have and what if any treatment is available.  The waiting is soul destroying.  Your mind like mine acts out the worst case scenario.  I have never liked watching too much television, now it is my best friend.  I have also found that listening to a comedy from BBC sounds in bed lulls me to sleep.  I can't think about the cancer and the radio at the same time.  Wishing you the best.

  • Hi Medie

    they have now changed my diagnosis to metaplastic breast cancer, so it’s been a lot to get my head around. I’m changing hospitals so will not meet with the oncologists till the 22nd.

    My 2 year old is keeping me busy so that helps but yes as you say it’s hard not to think about everything.