Terrified urgent 2 week referal for suspected sarcoma

Sorry just to add. I've looked at the referal again and they have ticked the box that says ultrasound findings are suggestive of sarcoma. I'd hoped it would be that they are unsure so they obviously think it isn't a lipoma or is this to get it through quicker? Sorry I'm really terrified.

Thanks. 

Anyone around? Really struggling. 

I don’t often respond to posts but I can see you’re worried about the potential diagnosis. It is very difficult to take the news that you may have cancer and it’s a natural and normal to feel the way you do. If you go to the Sarcoma website you can find lots of information about sarcomas. The first thing to note is the size of your lump. It would appear that you may have highlight it to your GP early. If it cancer which it may not be, finding it early is a good start. For many of us the tumour is not detected until it is much larger. Mine was over 14cm long and 10cm in diameter when I discovered it and that was 13 years ago. I have been dealing with my cancer for a long time and my advice is try not to worry . It’s hard to take that advice on board but at the moment you don’t know what it is or if it’s cancer. If the worse case happens and it is cancer then the doctors will put a plan together. The sarcoma website will tell you if it’s under 5cm it’s usually treatable and the reoccurrence rate is low. There is a good understanding of Sarcomas now in specialised hospitals and I’m sure you will be referred to one of them if the lump is found to be a sarcoma. I hope this offers some help?

Hi worried mummy, how are you getting on  now?

I too discovered a hard lump deep in my upper arm and I'm waiting to have an ultrasound in about 2 weeks time.  My arm aches around that area and I have shoulder pain, did you have any of those symptoms?  Let me know how things are going for you. x

Hi, 

So sorry you find yourself in this position. I've only just finally got my full results. Basically I had an mri in the beginning which showed some sort of what they thought was a fatty lump. They couldn't be completely sure because it didn't look like a typical fat lump so they told me to wait 3 months and repeat the mri. I did this and it shown that it had grown slightly. Because of this they recommended a biopsy. It was honestly one of the darkest times in my life and I've never been so terrified but I finally got the results after about 5 weeks that it's just a lipoma inside the muscle. They have recommended that I leave it alone as it may cause more damage than good if they remove it. My lump in is my mid arm but I get pain in my elbow. Have you got a date for your ultrasound? If not try ringing the department. I did and got an appointment that afternoon. Worth a shot. I know it's easier said than done but try not to fear the worst. I wasted months completely panicking. I was told that fat lumps are really common. How big is yours? I'm here to talk if you need to. 

Hi, thanks for replying and fantastic news for you, I'm pleased its a lipoma and nothing more but I can imagine waiting all those months was awful, our minds always jump to the worst case scenario!  My ultrasound is on 9 Dec so not too long to wait.  The lump measures about 1.5 cms with a few smaller lumps also in the arm.  Weird thing is I downloaded the NHS app so I could keep track of my appointments and I read the referral the Dr made for the ultrasound and she said small lump in arm with large lump, nonmobile in the armpit.  I had no idea I had a lump there as not checked it.  Naturally I'm thinking worse case scenario but that's because I've had a malignant melanoma about 8 years ago.  I'm trying to remain positive and not focus on it but it's difficult - every now and again I get really panicky but console myself with the fact I'm in the system now and tests take time.  I hope you lipoma is not causing you too much trouble. take care x