Myxoid Liposacoma diagnosed

Hi,

I was diagnosed with a Myxoid Liposarcoma of the thigh in 2021- thankfully, no mets. I had 5 weeks of radiotherapy and then surgery a month or so later. The radiotherapy wasn’t too bad side effect wise- some stiffness in the knee, tiredness, red and soreness in the targeted area. The effects are worse towards and at the end of the treatment but a good cream will help lessen any sore spots.

Surgery wasn’t as bad as I thought it’d be. The procedure was about 2-2.5 hours long which obviously, I was under anaesthetic for. I was only in hospital for 2 days so that was ok. It took probably a month or so for my leg to completely heal- I was off crutches after about a week. The worst part was the blood thinning injections post surgery. Horrible. The scar healed nicely and the skin around it doesn’t get too dry or sore. I did lose some motion in my leg and it can still get a bit stiff and achy from time to time but is generally ok.

As of March last year, I’m officially in remission and I’m on 4 monthly follow ups with chest x-rays.

I hope everything goes smoothly for you and that your full body and ct scans come back clear. If you have any questions, feel free to ask :  )

Thank you 

that is very helpful advice. And so pleased with your outcome. My consultant has promised that I will get back on the hills as long as my scans are clear and we can get cracking with the leg. Next Thursday for my results

Hi. I’m awaiting biopsy results.   It was described as a Mixoid tumour on the mri report.   Because of Christmas I’ve been waiting 3 weeks. I’m under royal orthopedic Birmingham

Hi Mich33 

Welcome to our community though sorry you have this worry, waiting for results is really hard. Good to hear you are under the royal orthopedic in Birmingham though since it is one of the sarcoma specialist centers. My wife is under the Churchill in Oxford so that was helpful for us to.

Hope you get some results soon and then find out what your next step is.

<<hugs>>

Steve