I hope this is ok to ask here.
in August of 2021 I had an MRI on a lump in my left hip. This was mid-covid restriction and just days after my mum passed away so things were a bit nuts, so I may be misunderstanding things but:
after the MRI I had a phone call from a lady who said that the lump was a fibrolipoma or a lipofibroma or something similar and nothing to be concerned about. She said that if it got bigger to go back to my GP. And I thought that was that. I was a bit annoyed as I have had a lot of pain and numbness in my left leg and thought this might be the cause but…covid, so I left it.
Ive recently been seeing a chiropractor for my back and leg pain and issues and she asked me to get my MRI scans so she could see them. I recieved them today and there was a report attached to this one that said it was ‘suspicious and soft tissue sarcoma couldn’t be ruled out’ that it was ‘atypical’ and it should be referred to the sarcoma team. Now the lady who rang me could have been from that team, but at no point did she say sarcoma. I would remember that. The report also says that it was hard to see due to my weight and there were limitations to the scan. And that there was significant subcutaneous oedema in the area.
I’ve been doing some googling and what I’ve found seems to suggest that any lipoma that’s bigger than 5cm should be treated as sarcoma until proven otherwise. This one was 15cm by 6cm then and I feel it might be bigger now. It’s never been biopsied or anything.
so, I guess I’m asking if they can tell from an mri that it’s not a sarcoma? Or should it have been investigated more thoroughly? This was almost 2 years ago. I’m worried it’s been missed.
Hi GrowingOld
Absolutely ok to post here, my wife has Leiomyosarcoma and our path to diagnosis was - let us just say complicated so totally understand your concern.
It is however worth nothing that lumps and bumps are very common and sarcomas rare but because of that suspected sarcoma is generally considered a fairly high priority - most doctors will not see a single case of sarcoma in their entire career. To help with this problem there are a handful of specialist sarcoma centres in the UK as we can see here.
It may help you to look at our page on soft tissue sarcoma and then perhaps talk to your GP about your concerns.
<<hugs>>
Steve
