Hi, I am trying to process the information my partner and I received yesterday. She was admitted to hospital three weeks ago with heart failure at 37 years old. She had been misdiagnosed by successive GPs in the weeks beforehand with asthma. Luckily we got her to hospital just in time. She was suffering pericarditis with effusions and the right side of her heart had collapsed. But the actual cause of it all was a complete mystery to the doctors.
She underwent a whole host of scans which resulted in them finding two masses, one on her lung and the other on her heart in the left ventricle. My partner was released from hospital but we have been going thorough the agony of waiting for a lung biopsy result. She is making great progression on her recovery from the initial heart issue. She is young, strong, and fit.
Yesterday we were given the news. It turns out that it is a form of sarcoma. They haven’t been able to determine precisely what type yet. Needless to say that it feels like our entire world has collapsed around us.
She has been referred to a nearby hospital that apparently specialises in sarcoma. I have been trying to stay away from Google given the type of stuff I initially uncovered before we even knew about the masses. I could really do with hearing about success stories right now if anyone has any. Finding something to cling onto right now is so hard for both of us. My partner is determined to kick its butt.
Hi @swyn,
So sorry to read your story and if I said #metoo we might stand together. Our route from first onset to a final diagnosis was long but it might not really help anyone to go into detail.
The good news is she is young fit and strong. Sarcoma is tricky because it is a rare form of cancer and tying down the exact type is important in getting the right treatment - lots of information on the sarcoma uk website, including the list of specialist centres.
Looking for a positive story - my wife's cancer is incurable but two rounds of chemotherapy have stopped it growing. Living with cancer is our new golden ticket and we are sure we will enjoy every single day. She has a check up at the hospital once a year now and the oncologist is really happy to see her doing so well.
Personally I think my wife in indestructible, though with my driving who knows.
As the husband of someone with cancer the thing I had to learn was to make time for myself - as they say you cannot pour from an empty cup and we really need to help each other to be the best we can be.
<<hugs>>
Steve
