Hi all. I'm brand new to this forum but wanted to join mainly for support and knowledge from those that have been through, or going through exactly what I have. Last year I was diagnosed with Uterine Leiomyosarcoma. I had a total abdominal hysterectomy with bilateral salpingo-oophorectomy. I then had 25 sessions of high dose radiotherapy and 2 high doses of brachytherapy. I'm now being seen every 3 months. I'm fine! What I would really like to know is, how will I know if it has spread? My symptoms before were extremely heavy periods that didn't stop, but obviously I won't have that anymore. I have a chest x ray every 6 months and told that this is where it could go next - but will I feel anything in the meantime that could prompt me to get seen sooner? I feel I'm trundling along in the dark at the moment, so any advice would be appreciated.
Hi Treenie and welcome to our most special club.
My wife's LMS was not caught as early as yours - but that story is long and perhaps not totally helpful to you, if you wanted you can read it by following my profile by clicking on my name.
Janice's LMS was found in her lungs - missed even in the hysterectomy. She has had two lots of chemotherapy and the second one seems to have stopped her cancer from growing - she is now normally monitored every 9 months but if she gets breathless is under instructions to - first go to A&E 999 call and then contact the cancer ward, she has had 6 collapsed lungs.
Janice has been really well now for some years; it is over 6 years since her diagnosis. It took her some time but she is now definitely of the mindset of living with cancer rather than anything else.
By the sounds of things it is possible they might have caught your cancer earlier and you may be cured. You might like to look at https://www.macmillan.org.uk/cancer-information-and-support/after-treatment that might help identify the next step in your journey.
Do post on here anytime, it can really help to share.
<<hugs>>
Steve
Hi both,
I notice Treenie, has quite a good profile entry - people can see this is they click on the user name in any message - really like the bit about golf. If can be very helpful to put something in there and to read other people's too as it can give some insight in to where the other person is at the moment. If people wanted to see mine just click on the green src60 at the top of the message (not the most inspired choice of username I know 
)
<<hugs>>
Steve
