Leiomyosarcoma Changes on CT scan

Hi Krazychrissy

One of the potential drawbacks of scans is that they will find differences and then the doctors will follow up "just in case". Janice has a lot of scans because one of the unfortunate side effects of her first chemotherapy was to cause a lung to collapse - the doctors have managed to fix that of course. Janice also has sarcoid alongside her cancer and some of the scans it is apparently a challenge to tell the difference.

The reason for a comparison scan is to see if what they have found is growing. If it is then it may be worth them doing more investigations in case it was the cancer - though of course it may still be something else, if there is no sign of growth then probably it is not cancerous and may just be an infection or scar tissue or something else.

<<hugs>>

Steve

Hi I have read loads on lung nodules...I did this because when my first staging scan was reported there were no lung concerns but once my pelvic tumour was biopsied the same team said that the original scan did have mets...they said now knowing my tumour was leiomyosarcoma and that it likes the lungs experience told them it was that but on a further scan undertaken for certainty it showed more all tiny 1 or 2 mm...I never knew whether two different scans...one with contrast one without could have meant the first one did not show up the others and they have stayed the same since. In my reading I learnt many people have lung nodules and these can be normal benign things in the lungs...scar tissue or infection response. Like Steve says they look for changes, growth of anything seen and although I'm not 100 percent how scans work I think my second was high intensity to look properly at lungs (why I wondered if the new ones seen maybe did not show on first and may have been there all along). Benign nodules are common in the general population but they will be being careful because of your  previous surgery/diagnosis, which although is worrying for you it's good they are on top of it...especially seeing in other threads about files being lost and scans delayed. I'm hoping for a good outcome for you xx

Thanks Steve, it's always positive to hear from you . I'm very pleased that I am being monitored so closely, the 4mm nodule on my right lung hasn't changed but they want a rescan within 3 months. Last scan also showed inflammation... hoping that's just my asthma/hay fever.

Sarcoma specialists have referred to lung specialist so that they can check again and closely monitor for changes. It's just scary.

On the positive, the LMS in my pelvic area hasn't returned and no peritoneal/bowel spread.

Trying to keepnpositive

Hope you  oth have a lively Bank Holiday Weekend

Hugs 

Chrissy

Thanks Annie

I have another CT scan booked for July, they are doing a comparison. I have a 4mm nodule which they want to keep an eye on, as you say, LMS likes the lungs.

Keeping positive is hard, but have picked myself back up again. The positive is my uterus/bowel/peritoneal area is clear, so I'm taking the positives.

Have a relaxing Bank Holiday Weekend 

Hugs

Chrissy