Soft tissue though sarcoma ewig sarcoma

I’m in the same boat in terms of confusion. I’m 38 with a 10 year old.

I’m going for my first oncology appointment tomorrow. I’ve not told my son yet. I will, but only when I know what’s what.

I suppose really you need the answers before you can tell them. What’s the survival rate, risk, category, all that jazz. Once you have that, I’d say you tell them if they are old enough to understand.

Fingers crossed for you, and virtual hugs.

Raggy, Do you have any support at home? Do you have any other family? If you do can you speak to them about your condition. I have fibromyalgia and everything gets put down to that so things can get missed. I'm 61 and my children are all in their 30's but I try not to talk about my worries. My sister was eight years old when my dad died in 1982 and cancer was never mentioned to her. Thankfully things have changed and it's the norm to be open about illness. If your children and very young it will probably be best to wait until you know what is going to happen going forward.

Take care, Deb

Thankyou for your reply, yes I have loads of support at home. I just struggling past few days dont know what to do hair is starting to fall out I knew it would and cut it short but even still it's falling out in clumps and is continuous and comes out loads but no noticeable bald patches as of yet don't know what to do but waking up pillow covered bath and shower covered even myself covered in hair is really annoying and getting me really down. What do you suggest I do ? 

Hi I am about to start chemo also and am aware of the hair loss to come. I plan to get a wig (nurse said she will help) and cut my hair short so that when I lose it it's not so upsetting and I can use the wig. I think children need to know something in stages and age appropriate....but so hard as a parent xx. Do you have an assigned nurse who could help you agree what you will share I'm sure this will be something they come across a lot....all the best and stay strong xx

Yeah I think I have two nurses it's not that easy to get hold of them only at appointments or leaving voicemails, I just don't even know where to start with getting a wig either x

Hi the hospital told me then can give a voucher towards it. My gp has referred me to Macmillan too they are a big support. I expect they can recommend someone near to you...take care xx

Ok thankyou I will ask as back on Thursday and then again 27th for chemo thankyou hun