Leiomyosarcoma finally diagnosed!!!

I've got my abdomen and chest CT's booked for the 20th of October then a consultation with the sarcoma consultant 13 days later. I think that because of the two week turnaround I'm going to feel like I'm never off the three monthly scan roundabout. My GP rang me today as my liver numbers were deranged and throwing out protein which is a sign of myeloma. We've been here before so we know it's not myeloma (blood cancer) plus as always I'm very anaemic despite taking iron tables twice a day. The good news is that my sugar levels are great!

Jane, has your sarcoma consultant said anything about removing the lung Mets? Rambo123 has had six surgeries on her lungs for mets. It seems strange that we both had leiomyosarcoma in a fibroid which in my case was removed whole yet my Dr told me that chemo and radiotherapy doesn't work for leiomyosarcoma yet yours is doing them both for you. I know that you already had mets when you had your hysterectomy but I have lymphovascular space invasion. I hope that everything goes well for both of you. Hugs, Deb

PS I was sent for 2ww last March, week before lockdown started. Diagnosed after usual checks so May/June last year.

Hi 

my consultant said they wouldn’t remove them. Strange how all say different things. 
If you look at sarcoma uk, online and Macmillan, both mention radiotherapy and chemo as possible treatments. I guess we all react differently so what may work for one, won’t for another. The option of surgery may change, along the way. Who knows, I’m just going with what they are telling me, for now and hope something works. 
thank our, good luck to you too 

jane x