Sarcoma - getting out the other side

Hi James, what a great  positive post! Great to hear that the 3 monthly scans have come back clear. Definitely have fingers crossed here for todays results for you. We all need to hear the good news stories.

I can only imagine what last year was like for you with Covid as well, I am not surprised there were delays. 

Please keep us updated with todays results. 

another disease-free scan :) Every positive result makes it less likely it will come back. I am not a believer in survival or recurrence stats, they can do at least as much emotional damage as good. After all, survival is binary isn't it?

Hi 

my husband has just been diagnosed and we are terrified . I think he would really benefit from having someone to talk to who understands x

Hi Vee48

I was diagnosed with Leiomyosarcoma in January this year and after 2 surgeries my first CT scan is clear. This is a great forum for support, it might be something you can read together or either of you to ask questions. Take care x

Thank you x

Sorry replied before I finished . Great to hear tour scans are clear . He had a ct scan at time of biopsy and that was all clear so we are hoping that bodes well too x 

Hi Vee48. I would love to help if I can. You can reply on here, happy to talk by email or phone later on. James

What type of sarcoma has he been diagnosed with?? I’m a survivor of pulmonary synovial sarcoma, 5 years now and 5 more years of clean scans to go but half way there.. I’m here if you want to talk..

Stay well and safe,

Kara

Hi 
that would be so great thank you .Can I message privately in here to share details ? 

Thank you Kara 

we don’t know yet are still in the diagnostic stage and waiting for confirmation from the consultant. I just think it’s so important he can speak to people who understands how he feels and what he is going through. 
Thank you  for the offer will definitely take you up on it and fantastic news we your clear scans x