Hi there, I hope it's okay to discuss surveillance scans. I'm hoping to get some advice if anyone has time. I had sarcoma cancer last year but thankfully it was treated. I need to get CT scans twice a year in case it comes back. Whilst discussing this...
Hi, My mum was diagnosed with a myxofibrosarcoma in her leg a few months ago. Since then, she has had 3 surgeries (biopsy and 2 further to try and clear it) and has recently started 6 weeks of radiotherapy. She had a chest ct scan last weekend, it has...
Update My husband got an appointment very fast when I phoned the London Royal National Orthopaedic Hospital and explained the situation. His appointment was on Friday. He had pretty instant results which were all clear. The hospital were incredible...
So after 4 years NED my team discharged me despite the plan to be reviewed for 7-10 years. After I got back in clinic im told my last test was 75% clear, but 25% inconclusive ... WTF! CT scan overdue, not sure what to expect and lost all confidence...
Hello All, (New to the forum- hope this fits in General discussion rather than anywhere else, but please let me know if not!) I am a 45 year old gay man and was diagnosed with Kaposi Sarcoma in 2020 by my local dermatology. Although it is non-HIV...
Hi, has anyone else had/been diagnosed with a uterine adenosarcoma? I was a month ago and had surgery on Monday. Struggling to find much information on them and would be good to talk to someone in a similar position to see if they have any more information...
I was diagnosed with a GIST after a stomach bleed last year. I have since had a partial gastrectomy and the tumour was found to be a gastric glomus tumour and not a GIST. I have been told that I am at high risk of the tumour returning and will have regular...
What a day yesterday... first visit to oncology team to be told that I don't have a stomach cancer but I have a 22cm gist tumor on my stomach which is also affecting my spleen...total bolt out of the blue and shock...never heard of this before and to...
I've just been diagnosed with pelvic pecoma. Not able to start sirolimus for a little while due to other tests/scans/checks being done. I know this is super rare so I'm just keen to try and find people in a similar boat to share this journey :-)
Hi I was diagnosed with leiomyosarcoma of my IVC in April 2024, had my 1st 3 month follow up at the royal marsden and they said I have nodules on my lungs but they don't seem concerned about them, I am absolutely terrified and can't stop worrying ...
