Found a lump on my thigh....anyone else?

Sorry you have this worry especially given the family history but there are lots of things that give rise to lumps. Sarcoma is fairly rare so unless you have some other symptom it is more likely to be one of the other things - not a great deal of reassurance while you are waiting I am sure.

That you are young and health is a real plus in that it would make it more likely you could have the best treatment if you needed it.

<<hugs>>

Steve

Thank you for your reply :) I went to see my GP who told me "Its a lump in your leg, i think its fine as nothing really goes wrong in the legs" we all know thats not true. Im not expecting this to be a tumor (or hoping its not) but to say nothing can go wrong in the legs is very wrong in my opinion, Most liposarcoma's iv heard of are in the legs/abdo so clearly you can get tumors there. 

Hes sent a form off for some scans on my leg, i presume ultrasound or MRI. 

I will keep you updated but hopefully its nothing serious. This would be the second time iv found a lump, the first time it was in my cheek near my jaw, that was needle biopsied and showed nothing suspicious, but the wait was horrid, much like this wait! 

Thank you 

I hope everything goes well for you, Nia-twiggy, and it is a harmless lump. I'll say a prayer for you.

As for scans, what I had was an examination by my regular doctor. Then went to orthopedic specialist who did an  X-ray and another physical examination. Then they had me get a muscular-skeletal ultra-sound. They said it showed a suspicious looking mass in my left posterior thigh that looked very concerning to them. 

So they next proceeded to give me an MRI scan. Ultra-sound can only show so much, an MRI gives them a much clearer and detailed image.

Now, before I proceed - the hospital I went to is #2 ranked (for 2018-2019) in the United States. They are #1 in cardiology and heart surgeries, #3 in orthopedics, and #5 in cancer care.

(There are two "expert eyes" who are trained to analyze imaging scans like an MRI: radiologists and oncology orthopedics)

Radiologist MRI interpretation for my tumor: "Likely myxoid liposarcoma or other sarcoma"

The orthopedic surgeon told me: "Probably a rare malignant tumor" (he did say it 'could' be benign - but without much conviction!) He is their top surgeon in this field.

So, long story short,...I was fairly certain I had a malignant tumor.

So, he has me get a core needle (CT image guided...it is pressing against my sciatic nerve) biopsy and the following week I visit his office prepared for the not-so-good news. Benign! A harmless neoplasm (intramuscular lipoma). Next they sent out for a genetics test (a FISH analysis DDIT3 test that looks for liposarcoma). Benign.

So, the expert eyes misinterpreted the scans!

So take each step (procedure) at a time and think positive thoughts. Know that scans are not fullproof as the doctors can come to wrong conclusions. Let it play out to its full course (after the biopsy results,...IF they feel you should have one).

A scary time in your life. I know! I was worried, I won't lie.

I wish all the best to you!

Thank you acrossthepond, It might sound strange but your story really did help me to compose myself a bit and stop worrying about the what ifs! 

Its a tricky one, i dont want to worry but when people say I've found a lump, alarm bells ring of course.

It doesn't help that some doctors expect you to know when it feels/looks cancerous and you need to see a GP, there isnt enough information online about the appearance or feeling of a cancerous/benign mass.

My problem is, i want to know if what i have sounds as though its suspicious, because at the moment i have no clue and im trying to prepare myself for any worst case news after my scan.

I noticed this lump literally 4-5 days ago when getting out the shower, just by chance because unless im slightly bending my knees you cant see it well.

Its about 6-7cm i would say, its not right under the surface of the skin, id say it feels like its deeper in my thigh like in the muscle or something. Its not squishy or soft, but at the same time its not rock solid, it feels quite hard though and i cant move it, it feels like its part of my leg.

I notice it most when walking upstairs or bending down because its then that you see the lump pop up, it nearly vanishes if i stand up straight.

It doesn't hurt, it almost feels sensation-less. 

How can you tell what a suspicious lump feels or looks like when its on the thigh?! iv never heard of anyone having a lump in their thigh, so im confused!

Thank you 

Hello, I found a lump on my thigh yesterday and have booked myself in with the gp for next week. I know I shouldn't but I've been googling... the problem with the threads I've read so far is that some o.ps just stop posting without saying their outcome- I'm guessing it meant they were clear and they didn't have a reason to come back to this forum, but those are the stories I'm looking for to make me feel a bit better! Yours is the most recent post I've seen, I'm wondering how you got on? Hope it was good news for you  x

I’m curious as to what happened? I too have a lump on my thigh that sounds just like yours and I just wanted to find out if yours was lipoma or more serious?