Worried about Sarcoma - Lump in Thigh

Hi everyone, I’m in a similar situation right now with my 5 year old daughter. She had a pea sized lump in her arm which the gp dismissed as nothing and it has taken a few months to get a gp to take it seriously. The lump has grown quite a lot in size. My daughter had an ultrasound last Thursday and a lipoma/cyst was ruled out. Our gp called on Friday to say he was making an urgent referral for my daughter to see a pediatrician. So I’m just waiting for an appointment to come through. I couldn’t help googling, and now I’m worried sick. 

I am so sorry I didn't see this sooner. I've just discovered that the email alert for a response was going to my SPAM folder. Thank God, my lump was a "nothing to worry about" lump, according to the radiologist the read the imaging. I'm praying that you hear the same result. And my prayers go out to the other person that responded with their young child having a small lump. Hopefully that's a swollen lymph node (due to an infection of some sort) that can clear up.   

Penelopebear, 

I am having problems with this site working on a mobile device. I want to say I saw you post that you had a lump running the length of your thigh? I found a lump on the outside of my right thigh last April. They did an MRI w/o contrast and it said no suspicious soft tissue or boney mass. It’s been a year now and I have noticed it’s got bigger and I notice it when I sit down in chairs at times. Every now and then I will have pains that shoot in my thigh but not often. I have also noticed what may feel like swelling on the inside of my thigh. I was just at curious what your symptoms or signs were. 

Thanks 

Hi Jessica

Thanks for taking the time to contact me, this is my second visit from sarcoma and in the same place,the first 2015 was soft tissue sarcoma that appeared to heal and clear up including 30 radiology sessions at clattbridge hospital 

The second same place but this time on or in the thigh bone,because of the previous operation  and radiology the skin was week and damaged each time it was stitched it opened again, the wound is still open this is the eighth month and no sighn of the end insight they have tried the VAC to help with the closure now there is an infection in the wound and the smell from the leakage is compared to something like bad eggs, cabbage, and sulphur I have photos  that I will try to upload

Kindest Regards 

Jim

Hi, I have the same symptoms as yourself. Knee pain eye twitches and have a lump in my left thigh and pain in my left leg which i could litterly saw my leg off ! I had a ultrasound scan today and she said and I quote you are right about the lump, you have a layer of skin a layer of fat and then muscle and the the lump has poked up from the muscle and I don’t know why,  but I don’t think it’s sinister  ring your dr in a couple of days for the results, I am now so worried as I know somethings not right , Would they give news ther and then or forward them to doctors? 

Hope you have had good news x

Hi Everyone,

I'm new here and not sure if I'm posting to general topic or to individual comment  but here goes.

I found your thread by searching on line as I have a forthcoming surgical procedure booked for a lump to be removed. It all started about 18 months ago when I was having a lot of pain lifting my right leg to go upstairs, it was hurting badly on the inside of my right thigh due to a long lump deep down inside, not visible from the outside. GP referred me to Physio who needed it several times making no difference a referral to pilates which eased off the pain but did nothing to get rid of the lump. Return visit to GP and referral to hospital for ultrasound and declared it to be benign and fatty lump type thing. Fast forward 12 months and I had a week of bad pain when it was really hurting me just getting up off the settee, a further trip to GP who gave me cocodamol which I took for 3 days and pain stopped. At the same time I got another referral to hospital to discuss possibility of surgery. Just had this and Dr seemed unconcerned and said it was up to me so I decided to have it removed and have forthcoming apt in Sept for the procedure. I am conscious that I am walking wonkily because of the lump although I wouldn't call it painfil. It is about 5 cm long and 1cm across at it's widest.

Reading through these threads, how can Drs be so sure it is benign just by viewing it on ultrasound?  I have a few smaller ones in other bits of legs but he seemed unconcerned with these and said I would find them if I looked for them!

Hi Crofty

It's good to hear you are getting it removed, when they do they will probably biopsy it but do make sure that is going to happen. I believe that ultrasound quite clearly shows the difference between fat tissue and tumour tissue, certainly when I had an ultrasound that was when things started moving really fast as the radiographer could see it was a tumour. 

Hi Kafupi

Many thanks for your reassuring reply. I will ask about a bipopsy at my pre op meeting. 

Hi Crofty!

It sounds like you made the right choice to me. Even if it’s benign, you’re having discomfort and it’s affecting your walking. I would have it removed too. 

Someone here can probably give more detail, but from my understanding with experiences of breast ultrasounds and the fatty node in my leg, I believe they’re able to tell based on whether or not they can see through the mass. One of the things they’re  looking to see is whether or not it’s fluid-filled or a solid mass. If it’s fluid-filled, it’s a cyst. If it’s a solid mass, it could be cancer and will need a biopsy. I say “could be” because some other things, such as the fibroadenema I had in my breast, are also benign. I hope this helps bring you some comfort! To be certain, you can ask about this at a pre or post appointment for your surgery and ask how they’re certain it doesn’t need to be sent for biopsy.

Jessica 

How are you doing Jim? I’m so sorry to hear about your endless battle. 

Jessica