Hey everyone,
I'm new to the site and have to say I've found it really helpful. I'm 33, female, and not diagnosed with anything but just starting out with some tests to see what's going on. The internet is great for information, but I'm starting to freak myself out more than I already was.
About 3 months ago I noticed a hard lump on my upper-mid thigh (right leg). I noticed it while rubbing lotion on my skin. It is deep down IN my thigh, not up top on the skin's surface and isn't a dome above my skin or anything visible to the naked eye. I have to press down to feel it. It's hard like a marble and doesn't move around when I touch it. I know my body well and this was definitely very new. I decided to wait and see if it would go away, but it didn't. Then, I started having a dull aching pain in that part of my thigh that comes and goes. In the last week it is happening more and now my right knee feels achy too which is odd because I'm not doing anything out of the ordinary. I finally made an appointment with my PCP (who is also an internist) and saw her last Friday. On top of the lump, I have been feeling really off the last 2 weeks as well. She examined me and flat out said she doesn't think it is a lipoma and asked me a lot of questions about the pain that started to occur and whether I thought the lump grew in size. I have tried to keep track of whether it grew, but definitely know it isn't get smaller. It MAY have gotten slightly larger, but not anything astronomical. It's the size of 1 or 2 peas. All one solid mass.
She is having me get an ultrasound (happening this Thursday) and she also did some blood tests. I'm meeting with her next Wednesday to go over the ultrasound and stuff since she will have the report them. She said the ultrasound will let us know if its a cyst or hard mass, and then we will go from there. She said it is "probably nothing" but needs to take a better look.
My father died of colon cancer a few years ago and my mother was diagnosed with thyroid cancer just this last Christmas. Naturally, I am worried about this being cancerous. I am getting married in 3 months and it is all a little nerve-racking. I know there are lots of benign tumors and cysts out there, but I can't help but be really anxious.
Should I be worried? Or am I getting anxious for no reason?
Hi and welcome to the community, I understand your worries especially having had cancer visit your family twice. As you have said lumps bumps cysts and the like are really common, sarcomas meanwhile are really rare. Sounds like you doctor is taking this seriously and hopefully will soon get to a diagnosis and will help put your mind at ease.
<<hugs>>
Steve
Hey!
Its perfectly normal to feel worried but at the same time feel comforted that its being investigated, I hope you've had some answers now or are to have some soon. I had similar symptoms and it turned out to be sarcoma but I am a survivor now and have got through it. I sincerely hope it wasn't the case for you but in case it was or if you want any further information I have created a blog detailing my experience with pictures also if you'd like to take a look http://jessicassynovialsarcoma.blogspot.co.uk/
My blog isn't scary so don't be worried I speak purely positive and informative aside from my journey to diagnosis and keep positive updates of my health and healing process.
Hope this helps and things feel better soon,
Love, Jessica
Thanks so Jess & Steve for your responses. I forced myself to stop reading message boards and researching because I was making myself more anxious. A lot has happened since I first posted, and now I feel like I am in a better place with my anxiety (sort of).
My doctor called me into her office after the ultrasound. The ultrasound confirmed a solid mass and reports indicated I needed a followup MRI to rule out sarcoma. My doctor didn't have much to add that I didn't already know. I went in for my MRI, with and without contrast. I already knew they I would need the report and image disks for a potential specialist, so I was able to read my report before even speaking with my doctor. Luckily, I work in health care and feel like I am a well educated patient. My doctor, again, called me in immediately to discuss results. The radiologist couldn't rule out sarcoma and recommended follow-up.
I realize this is a UK board, but I actually live in the USA and are located near a hospital operated by Johns Hopkins where a sarcoma specialist works. They have great programs for orthopedic surgery and sarcoma treatment, which is where I schedule a consult. My new doctor is a sarcoma expert and was VERY comforting. I like to know the statistics and clinical facts, but can't help wonder about the "rare" chance of having sarcoma. My fiance came to the consult with me (I'm getting married in less than 55 days). He read my scans and said I could have an angiolipoma (which might explain the pain I'm feeling) but he can't take liposarcoma off the table either. Statistics are on my side since liposarcoma is rare, but so is an angiolipoma presenting in a single mass (often presents with multiple nodules). I'm having an excision biopsy to take the little bugger out of my thigh. I will recover right in time to get married and hop off to Aruba for my honeymoon. The doctor warned me that I will have crutches or a cane for a few weeks, and also told me how to be careful with my scar while in the Caribbean sun. My excision is on May 24th. (I scheduled far out because I needed to finish some family, work, and wedding tasks)
The doctor also sent me in for an Xray, which I finally did last weekend. Probably because of my developing mild knee pain on the same leg.
The doctor did say it could take weeks for my biopsy results to come back and that if it is liposarcoma there is a change I will need a second surgery. One step at a time. I will definitely know for certain before getting married. One step at a time.
If this is liposarcoma, I feel less worried than before. Nothing I can't manage, especially since it's being caught early (whatever classification it comes back as). Though, my worry hasn't completely gone away. I am just trying to keep VERY busy and distracted.
Hello again,
I've lost track of time but I hope you are doing okay? Everything you've dealt with seems like a complete whirlwind! Well done you for putting on a brave face and getting through what you have done so far and not letting it ruin your wedding or holiday, my mind is a bit puddled right now so I'm not sure if by this time you will have got married yet but if you have congradulations! I hope whatever update you have is good news or at least news you can handle, you seem like a strong lady so I'm sure you will be able to fight anything! Lots of love and hugs your way.
Jessica x
HI welcome to the community, just picked your message up as I sometimes live in this group though my wife's sarcoma is quite different. Just about everyone anywhere here in all the groups will recognize the issues with waiting for scans, waiting for results and if it is cancer deciding if to have any treatments, waiting for treatments, waiting to see if the treatment is working (you might notice waiting here is rather common :-( ).
Are you in the UK? If it does turn out to be sarcoma there are a few specialist centres, thankfully we live really close to Oxford and my wife's consultant just happens to be one of the countries leading researchers - just luck I guess.
Lumps are very common, I have a good collection and sarcomas are really quite rare so fingers crossed for you.
<<hugs>>
Steve
So glad I found this thread. I have a lump on my upper arm and have an ultrasound in three days time. Â The longest three days of my life. Â I have a dull chenthat radiates out from the lump which makes me feel nauseous. Â Conincidentally (?) it is on the site of a break I had four years ago. Â I am worried sick. Â
Hi welcome to the club nobody wants to join. Lumps are really very common can be all sorts of things and if they press on a nerve can cause all sort of issues. Glad your GP took it seriously enough to get it checked out and you are on the right road, probably if will be something of a false alarm but whatever let us know and we can provide some support. I know it is probably not totally helpful but try to distract yourself with something else as whatever it is worry only makes it harder.
<<hugs>>
Steve
Thanks, Steve.  Just feeling a little alone at the moment as don't want to say anything to family.  Hardest thing is that my son in law is a doctor but I cannot confide in him - yet.  Hopefully, it is something and nothing and, as you say, whatever it is  is pressing on a nerve, hence the pain.  I will keep posted in the hope that I can understand/comfort someone else.
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