Hi everyone
I have had a soft tissue sarcoma removed from the back and side of my thigh, from what I have been told my scar runs from knee to bum and back down!
Im back home after 2 week in hospital post op and the district nurse mentioned the recovery period is around 6-9 months
I'm wondering how long others recovery time was
Thanks in advance
Alice
Thankyou foe your reply. It's good to know that life and the leg does return to normal.
Thankyou again.
Best wishes
Alice
One step at a time
hi Alice I had two of my quad muscles just over three weeks ago I am recovering well using one crutch when outside it is much better than I expected! Start my radiotherapy soon but really believe the worst is over! Good luck with your recovery xxxSuperReedy said:Hi everyone
I have had a soft tissue sarcoma removed from the back and side of my thigh, from what I have been told my scar runs from knee to bum and back down!
Im back home after 2 week in hospital post op and the district nurse mentioned the recovery period is around 6-9 months
I'm wondering how long others recovery time was
Thanks in advance
Alice
Oh Jakie that's brilliant progress!
My radiotherapy won't be happening for a while yet because I still have a open wound that hasn't healed enough for a skin graft to be suitable. I caught e.coli in my leg too so antibiotics need to work for the tissue graft to be a success. Like yourself I'm hopeful I'm over the worst!
Good luck for the rest of your treatment and do keep me updated
Best wishes
Alice
One step at a time
thanks Alice I know I've been incredibly lucky the treatment I received was first class! I go to the beatson clinic tomorrow for my plan in not sure when my treatment will begin but I'm thinking pretty soon as my wound looks pretty good too I will keep you up to speed and please do likewise! Keep asking questions as not knowing how things should be is worse than anything take care xxSuperReedy said:Oh Jakie that's brilliant progress!
My radiotherapy won't be happening for a while yet because I still have a open wound that hasn't healed enough for a skin graft to be suitable. I caught e.coli in my leg too so antibiotics need to work for the tissue graft to be a success. Like yourself I'm hopeful I'm over the worst!
Good luck for the rest of your treatment and do keep me updated
Best wishes
Alice
Is that the one at the Gart Navel? My team are based there too although I had my surgery at the Royal Infirmary.
It's amazing how quickly you are recovering. I try asking questions but no one seems to know alot which makes life difficult but things can only get better.
Best wishes
Alice
One step at a time
i also had my surgery at the Royal mr Gupta and mr mahendra who is your clinical nurse? They seem to be the best ones to speak to I was kept very well informed and anything I was unsure about I just lifted the phone was it a sarcoma you had removed? XxSuperReedy said:Is that the one at the Gart Navel? My team are based there too although I had my surgery at the Royal Infirmary.
It's amazing how quickly you are recovering. I try asking questions but no one seems to know alot which makes life difficult but things can only get better.
Best wishes
Alice
sorry silly question of course it was! Would you like to contact me via Facebook messenger? My name is Jackie I live in Paisley if you would like to make a friend request might be easier to communicate that way? ZxUnknown said:SuperReedyIs that the one at the Gart Navel? My team are based there too although I had my surgery at the Royal Infirmary.
It's amazing how quickly you are recovering. I try asking questions but no one seems to know alot which makes life difficult but things can only get better.
Best wishes
Alice
i also had my surgery at the Royal mr Gupta and mr mahendra who is your clinical nurse? They seem to be the best ones to speak to I was kept very well informed and anything I was unsure about I just lifted the phone was it a sarcoma you had removed? Xx
Hi Alice,
Wishing you a speedy recovery. The worst part is over .Don't over do things.
Are you at the Beatson and is Prof Reed your Oncologist ? He is excellent if that's who you have.
They have a great team there, you will be well looked after. I spent months at the Beatson.
Enjoy being home again amongst family and friends.
xxx
IMG
Hi Alice,
Depends on how a person sees recovery - I had a myxofibrosarcoma [I think that is a soft tissue one] in my ankle and growing between the tendons of foot as well. I had my leg amputated below the knee 4 and a half months ago, and I would say that surgically the recovery time was 6 weeks to the day. However fading of the stitch line on both sides of the stump [mid-calf level] is still in process, and general sensitivity is also progressing slowly. However with the medication for pain and the determination to walk with my prosthetic, I am progressing well. Stay positive and you will be going from strength to strength in no time!
Lots of love and blessings,
Christine
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