Hi Everyone,
I posted on here at the beginning of 2023. I'd had lumpectomy left breat August 2010 followed by 8 chemo and 15 radium.
2020 lumpectomy on right breast, no chemo but 15 radium.
On 16th December 2022 I noticed the underside of my left breast had gone a funny, brownish/red colour.
Long story short, saw consultant who thought it was a bruise but did scan. Discharged with 'keep an eye on it'.
The discolouration spread so I went back. Still same diagnosis but different consultant.
It went worse so back again to my 2020 consultant who did 3 biopsies all negative. Couple more appointments and she said she was sure it wasnt angiosarcoma but consultant radiologist would know more. I'd never heard that word before. Also told me radium treatment could cause skin issues. After 13 years I was a bit surprised but maybe I'm a late developer. I never saw consultant radiologist.
Couple of days later I thought I'd see what I didnt have and was shocked that the online photos could have been me.
Anyway, consultant insisted it wasn't AS but my research said the only way to tell was to biopsy the purple spots. This wasnt done but I figured if I had it I was a goner. If I didn't I'd be ok. At my age I've lived longer than any member of my family anyway.
TBH they made me feel like a hypochondriac nuisance so I left it.
On 5th August I went for annual mammogram. I was recalled for further scan and 3d mammogram on 22nd August. All fine they said.
5 days ago I noticed that the same discolouration had spread to my right breast.
I rang my Macmillan nurse, who'd been on this journey with me since December, and she suggested it was an insect bite. Keep an eye on it.
To say i feel stupid is an understatement.
I've decided, based on my 'goner/ok' self diagnosis that I will not, ever ring them again. Let it run its course.
My left breast is slightly paler than in December but its 8 months - some .longterm bruise.
I am keeping my eyes on both now but feel so terrified and weepy all the time.
My husband is recovering from surgery but is getting stronger.
I'm 73 next month. He's 78.
Stay safe everyone and good luck xx
