Lump in forearm - excision biopsy?

I had a lump removed twice as they said it was a cyst no need to worry. The original tests were not correct it was in fact a spindle cell sarcoma. I was referred to Birmingham where it was removed again unfortunately it had spread to both lungs, I believe that a blood test can reveal sarcomas.  I would not recommend anyone other than a sarcoma specialist have anything to do with this take care 

Thank you for your reply and sorry this is late- was this on the NHS? Ive been rejected for an MRI and am now going private for MRI. The only thing ive been offered is the excision which will be sent to pathology, ive already asked him to send the case to tumour surgeons which i think are the sarcoma specialists, but they advised to go ahead with removal saying the full cyst is visible from the ultrasound. I am still very scared and having done my research from multiple peoples lived experience like yours saying do NOT let them just take it outs , think i will push ask again if needle biopsy is possible. I feel at a standstill having contaced sarcoma UK etc, and was advised can go ahead - but dont understand why they wouldnt err on side of caution with needly biopsy and go with the orthaopedic surgeon instead, they just want to get it out  - i have a pre op assessment tomorrow so may see surgeon then

They also keep saying this could be a granuloma, most likely a cyst etc - well so did the GP in november !! And now it has been growing with blood flow etc. i dont feel i am taken seriously because of my younger age etc

Hi Han.s my treatment was with the Nhs at Birmingham orthopaedic hospital the sarcoma team were horrified to find that I had two previous attempts to remove the lump without any consultation with th first. I am surprised they haven’t already referred you to Birmingham. Keep airing your thoughts with the doctors and medical staff, sarcoma s don’t respond well to intrusive behaviour. I hope all es well for you