Saw staff at Guys hospital yesterday re’ BCC on my nostril. Surgeons recommend MOHs Surgery with likelihood of cartilage and cheek or forehead flap. I am terrified. Was told entire process would take a year. The team said I could opt for radiation therapy instead but the radiologist then said she didn’t recommend it at my age 53 as there was a 1 in 100 chance it could cause secondary cancers at the site in the next ten years and I’d alread had previous skin cancers. I’m still thinking this may be a preferable option. Any advice from people who have had this?
Hi and a very warm welcome to the online community
I'm sorry to hear that you've been diagnosed with a BCC on your nose. Trying to decide what type of treatment to have when you've been given options is always tricky.
I've had a look, using the search bar in this group, to see if I can find others who have had radiation therapy for you to chat to. Unfortunately there are very few posts on this topic and most are several years old so the posters are unlikely to still be members of the group.
I have found this information for you from BAD (British Association of Dermatologists) on radiotherapy for skin cancer which you might find helpful to read.
When you have a minute it would be useful if could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
Let us know what you decide to do
x
Hi Dawn53
so sorry to hear this, I and a couple of people on here have recently just been through this, I had x2 bcc one on very tip of nose and one a bit further up., I was told by my MOHs /plastic surgeon, that radiation was not a very good option, am also in my 50s.
I had MOHs on 1/10/19 the next day I had the forehead flap, then 4 weeks later the separation. I’m not going to lie it’s been a journey and a lot to deal with, but you get through it, Mine had spread infiltrating down my septum, I promise you everybody can’t believe how good I look and with make up you can not even notice.
For me the worst part was the waiting to get it done and even though I had researched so I knew what to expect, it’s tough but you will get through it. I had to stay in except for getting dressing changed in flap that is just 4 weeks. I have exchanged photos with a couple of other girls via email am happy to do this if it helps.
good luck you’ve got this
Frankie1
Tracey x
Thanks Tracey. Where did you have this done? I would like to see your photos if you don’t mind. How do we exchange email addresses?
Also what reasons were you given for not advising Radiation Therapy?
Hi
How are you and have you decided on what type of treatment to have to remove your BCC?
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Radiation therapy hopefully - waiting to see what Mount Vernon Hospital day as it’s closer. Meanwhile trying to forget about it.
I'm hoping you're feeling more settled now you know what treatment you're having .
It would be really good if you could come back and let us know how the treatment went as very few people in the group have had it and it would be really useful for people coming here in future.
Wishing you all the best
x
Well hopefully everyone will agree. My local dermatologist is supportive and I think I have a strong case as I’ve had 2 lengthy heart surgeries and cannot face any more.
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