SCC on lip - change of plan

FormerMember
FormerMember
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Saw the plastic surgeon this afternoon about the SCC on my upper lip. It had been discussed in a multi-disciplinary team meeting this morning and the options are surgery or radiation.

The problem is the cancer has grown since the biopsy and surgery would mean the removal of a large part of my lip, with reconstruction involving skin grafts. The surgeon said his recommendation would be to go with radiotherapy. It will take longer, but the same in terms of getting rid of the cancer and less invasive. 

I now have an appointment with the oncology team in a week's time. I wish each new stage didn't mean waiting another week, but at least I feel like I'm in the system and someone is managing it.

I'm learning to live with the imposter on my lip. It's small things like brushing my  teeth that are awkward and I have to be careful eating and drinking, not to knock it with a fork or cup. The other problem is shaving. I've had a very closely cropped beard for years, but I don't dare taking a beard trimmer anywhere near the lip, so I now have an unruly and irritating mustache.

Those things are trivial really. Just hoping I've made the right choice.

  • Glad to hear that the swollen lymph node is looking like a red herring - not literally of course!

    It's also good news that preparations for your treatment seem to be progressing. 

    I hope you're taking advantage of this warm weather to get out and about in that new sports car of yours Slight smile

    Take care

    x

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  • FormerMember
    FormerMember in reply to latchbrook

    The last week has been a bit of a roller coaster. On Monday I was going through the gumshield and mask fitting for the radiotherapy when the oncologist, who I hadn't seen for several weeks, came in and remarked my lip looked a lot better.

    Fifteen minutes later I was on my way out, radiotherapy having been put on hold for 6 weeks. Carcinoma isn't supposed to get better by itself. However, the original histology suggested two possibilities - SCC, which they thought was most likely, and keratoacanthoma, which appears the same at first, but is benign. It's looking like the keratoacanthoma is what I have after all, but only time will tell.

    I have an appointment on 20th June, and in the meantime if anything flares up I'll call them. Not sure what happens when the 6 weeks is up - the way it looks, it might resolve itself.

    It's hard to say how I feel. Initially it was a massive sense of relief, but I still know I'm not out of the woods till the doctors say it's all cleared up. Definitely more relaxed about it all though.

  • That would be great news if it does turn out to be a keratoacanthoma .

    I'll be keeping my fingers crossed on 20th June! 

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  • FormerMember
    FormerMember in reply to latchbrook

    Saw the plastic surgeon on Thursday. They're now certain it is keratoacanthoma and is clearing up by itself. The middle of my lip is still a little redder and thicker than it used to be, but I don't think anyone but me can tell the difference. I have to go back in six months time to check it's all still okay, and meanwhile I'll be watching my skin very carefully.

    Family, friends, medical team are all delighted and there's been plenty of talk about miracles. Thanks for your support and encouragement. It's been a bit of a roller coaster, but turned out well in the end.

  • Oh, I'm really, really pleased to hear this !!!!

    I hope you're going to have a little celebration 

    Champagne glass

    All the best xx

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"