Appendiceal adenocarcinoma

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This is my first post on this forum

My 46 yrs old son has just been diagnosed with appendiceal adenocarcinoma and diagnosis has taken so long as the biopsy tissue was not a good enough samples as it kept breaking up. So we are now approx 3 months and still no treatment plan and awaiting latest molecular results to be able to form a targeted therapy that hopefully will work better than ordinary chemo.

He's been told they can't operate as the cancer has spread too far,  to omentum and liver and he is now palliative care only. He is trying to find a surgeon who will agree to a debulking operation to make him more comfortable as the cancer is taking stomach space and pressing in lungs. 

I'm his mum and I'm so desperately sad and keep being told to stay strong for my boy.

I'm really doing my best but I'm really really struggling. Thank you for listening 

Myboy 

  • Hi...I am Christie Hospital patient. I had surgery in July 22. Has your local hospital referred your son to The Christie or Basingstoke?   I would recommend joing the below group...its a registered UK charity for "our" cancer and there are lots of group members who have experience and can give you support.  

  • Hi mgiom

    His local hospital did refer him to Christie's but they said it was inoperable because the portal vein and the liver had involvement.

    He has asked for a second opinion with Mr Cecil at Basingstoke he knows he can't be cured but hopes for some debulking of the secondary cancer in stomach .

    My daughter and he are researching like crazy to find a surgeon that will think outside the norm to offer him something.

    Thanks myboy

  • Sorry Tgiom for getting you name wrong

  • I’m so very sorry to hear this. I had this too. But when it’s your child it’s another level of pain. I hope and pray he finds some help and support from Basingstoke. They do these procedures in the sates. I only know of The Christie and Basingstoke who do this here. I had my op at The Christie. 

  • Thank you for you reply A. Fairy and I hope you are well.

    My daughter is researching like mad as was my son, but he's getting tired now.  she is contacting America tomorrow (Tuesday)

    You are so right it is a different level of pain that I didn't know was possible.

    I am barely coping, but keep being told to stay strong. When I see him cry it breaks me.

    It's all happened so quickly, Christmas was great with both my kids and all four grandchildren as usual, by Feb the diagnosis, April palliative, it's just so shocking we as a family can't take it in.

    Thank you for caring

    Myboy