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Bit of history, started on Degaralix injections April 2024, swapped to Regulolix June 2025, Daralutamide from June 2024, 6 sessions of Docetaxel which finished November 2024. Had the usual fatigue but nothing I couldn't cope with, however since last...
Received a letter yesterday summarising my meeting with the urologist from last week. All as expected - except for the word cribriform which never came up at the meeting. I understand this isnt good news - no change there. I take farting without following...
Hi, i have been wondering if anybody has been given a care plan on their journey. My husband is well into the journey but we have never had one, well nothing that i would describe as a care plan, being a retired nurse. if so, what does it consist of...
Just back from latest consultation after being on Relugolix for the last six weeks. My PSA was down from 19.9 to 5.2 and the bone scan came back clear. Don't see the consultant again now until September and will find out about radiotherapy then. ...
Hi. My husband just found out he has prostate cancer. He is waiting on a biopsy and bone scan to see how far it has spread. We are both finding it really hard. He isn’t sleeping and I just don’t know what to do or say to help. He is only 53.
My partner just started Enzalutamide for castrate resistant advanced prostste cancer which was diagnosed 4 years ago. He was treated with chemothersphy and radiation at the time and Decaptyl. He is currently in his 4th week of the drug and feeling very...
Hi All, Not been on here for a while so thought I would give an update on my progress. Having been on Darolutimade for the last six months I have noticed some very strong changes to my body and wondered if anyone else is suffering with similar symptoms...
Hello My husband was diagnosed with prostate cancer last week, Gleeson 3/4, level 2. His consultant suggested HIFU therapy. I'd be grateful to hear from anyone who has had this treatment and their opinion on it please? Thank you :)
I wrote a thread a month or back on feeling abandoned by Oncology and having been discharged and referred back to my GP for monitoring. My latest PSA reading has come just now at 1.2 from 1.7. 3 months post radiotherapy and now 11 months into 24 of...
My partner has started getting quite nasty sciatica-type pain, as well as leg twitching - it seems as though the twitching then sets off the pain. He has mets in his bones, and we're assuming it's the pelvis that's pressing on a nerve - he had a spinal...
