Hi everybody, sad to be joining this group, but looking for advise and support

  • 23 replies
  • 193 subscribers
  • 696 views

Hi. Not me but my husband I am dealing with.

so he had a psa result of 15 he is 71, a suspicious rectal exam, two areas found hard. He has been referred for mri, ct scan and bone scan. Are all three necessary before a diagnosis has been given. Especially the bone scan. All three in one week!

  • You have found the right place  .

    Here you will find truly useful information and support as you go along your way.

    At the moment you need reassurance that you’re not alone. We are here. Just ask and you will get. 
    It’s a shock to be placed in this situation but you are here nonetheless the less and we welcome you. Your hubby will be having a load of tests both outside and inside his body and the wait for a face to face appointment where all that data is gathered and reported on. It will take a while and you will have questions so don’t be afraid to ask.

    The mainstays of our wonderful forum will guide you though the process better than I so I’ll duck out and say good luck.

  • Thank you for your time.much appreciated. 

  • Good morning from another wife .

    your husband is having his tests done quickly which is excellent 

    once you have all the results you will then know what your dealing with . This group totally amazed me with the support when my husband was diagnosed with PC . Although he not on a curative pathway he is thriving and doing exceptionally well ( dies gym 5 days a week & walks )  . The hormone treatment / radiotherapy has done its magic and his PSA remains at undetectable . 

    please keep in touch and ask any question even if you think it’s trivial .

    sending you both hugs 

    Liz & OH xx

  • Thank you very much for taking the time for me. I must say I am so glad to have found this site. It must be such help to be able to talk with like minded people who just get it. Xx

  • Hi Cabb

    I am a bit surprised that they are doing all this before the biopsy to confirm that it is cancer.

    However some might say get it over with as some people have to wait weeks for further scans.

    Difficult one, I suppose u could query it with them and ask why not biopsy first but that's just my opinion.

    Best wishes 

    Steve 

  • Hello  

    A warm welcome to the group from me although I am so sorry to find you joining us.

    Your husbands team are correct and to get all those done within a week is amazing. He will need a Prostate Biopsy to confirm everything but those tests are the "Gold Standard" to form a full diagnosis. The hardest part is waiting for the results.

    Please do ask any questions - nothing is too trivial.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Thank you, that is very reassuring. I must stop googling, I know I shouldn’t but it’s becoming an obsession now. Is that normal. My husband isn’t interested. He says what will be will be, whilst I am tearing my hair out thinking I can’t wait much longer to find out and then deal with it. I am very impatient. But thanks again. Much appreciated. 

  • It’s certainly normal for many people which included myself.However,if I managed to find something reassuring I carried on until I also found something contradictory.The reverse was also true.

    I have wasted many an hour in the past seeking reassurance but ultimately it is your oncology team that will be in a position to explain your own very particular circumstances.

    It seems that your team is very much on the ball,so I would advise anyone to try to wean yourself off Dr.Google.

    I suppose there is truth in the Que Sera maxim,but medical intervention is the best tool to get the best outcome.

    All the best

  • Hello  

    Quite right too:

    I suppose there is truth in the Que Sera maxim

    That's just the name of my own thread:

     RE: QUE SARA SARA 

    And just how true it is,

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Hi there.

    That's pretty much what I had - MRI first, CT Scan and Bone Scan on the day, then the biopsy.

    It was pretty full on BUT I had the diagnosis and the start of treatment immediately, followed by a long term plan for full treatment.

    Once I had got through it, there was a clear path. I found that once I had that I began to recover my sensibilities, and could look forward to things again.

    I suspect that you might be in the same place.

    The "Dr Google" thing is quite usual. You are finding out all you can about a threat to your family. There are better ways to do it. Try to restrict your research to the NHS, Cancer Research, Prostate Cancer UK, MacMillan and Prostate Cancer Foundation.

    Then come back here for realistic understanding, not of the medical stuff, but experience of just what it all means. This experience supplies context that will help your husband, and yourself, live again.

    Steve

    Changed, but not diminished.