Need bit of advice for my dad

Hi and try not to worry. The bone scan will see any lesions that are in the skeleton, the mri will report and all the diagnostic data will leave you so confused you will need a cuppa. But simplified down it’s the treatments that you’ll need to concentrate on.

The multi disciplinary meeting will choose the possible pathways and your Dad will choose either or none.But by then you will have the advice of clinical staff who will explain each option and here amongst all the wonderful forum members you will get experienced stories of their own choices and treatments.

You are in the right place. You will get help here for any question you might have. The most important thing is that you stay calm and ask all the questions you need to get your head into gear.

Theres no need to panic, but if you do? lean on us.

Good luck

Thankyou for your reply what I'm worried for is if they say he has no time left it's also my dads biggest fear 

How old is your Dad? I’d have thought there’ll be plenty of time left, unless he’s in his mid 90’s.

Good luck

They never normally give you a prognosis and his psa is not that high. My husband is nearly 81  had a diagnosis with a psa of 1200. That was four and a half years ago and he is still with us. He has many other health issues and his hormone treatment is now not working as well. However, whilst there are no longer any suitable treatments for him  and a psa of now 344, I am told men can still live many more years with a climbing psa.

Hello Haykim 

A warm welcome to the group, although I am so sorry to find you joining us. Dad is at the hardest part of the prostate journey - where they do all the tests leading up to a full diagnosis.

Here's a fact - 98% of men diagnosed with prostate cancer die WITH it not OF it.

From your post I can tell you PSA of 56 is high (mine on diagnosis 5 years ago was 182) and I am feeling great although still on treatment, so I hope this helps with his/your anxiety.

T3b N0 - this means the cancer has left the prostate and is in the seminal vesicles BUT NOT in the lymph nodes.

100g - dad's prostate is larger than normal.

Pirads 5 - The MRI has given a clear view of the prostate and a positive cancer diagnosis is the likely outcome.

The bone scan and ultrasound will be to check for any spread and I think to see if the prostate has grown into his urethra. The Prostate Biopsy will be to check how aggressive the cancer is.

All in all his team are looking after him and he's running through all the tests prior to a treatment plan.

I do hope this helps - please feel free to ask any questions, however trivial.

Best wishes - Brian.

Hi Haykim it’s easy to say don’t worry, but of course you are concerned.  I wrote a post on here earlier in the year which you and other ‘newbies’ might find useful.  The end - straight to palliative care! 

Thankyou so much for your reply and explaining it gives me alot of hope knowing so many ppl have survived this and stil going  and how positive the stories are . You just feel very alone with it like your the only people when I jo its going on and happening to so many unfortunately. 

Weve just got back from the ultrasound and told he has fluid on his kidneys I dont no what this means 

Hello Haykim 

"Fluid on his kidneys" could well be just what started me of on my journey. It can be caused by urine not clearing from his bladder and this in turn is caused by an enlarged prostate. if you click on my user name or avatar you can read my entire journey - I hope this helps.

Best wishes - Brian.