Hi,
I'm a 62 year old male who has just been diagnosed (today - 01/10/25) with Prostate Cancer (Gleason 7 (3+4)).
Have an abdominal CT and Bone scan coming up in the next 2 weeks to ascertain whether it is fully localised (although my Urologist firmly believes it is), and then the decisions will be necessary on how I proceed.
Very happily married, for over 35 years, still working (but planning to retire in 2 years) and living in Spain.
Our Daughter, and her partner, are expecting our first Grandchild (a girl) in December and our son, and his partner, are expecting our second granddaughter in February, next year.
I lead a fairly active life and feel I have a lot to live for so will be needing some support to come to the correct decision as to how I move forward (Surgery v Radiotherapy etc.) with my treatment, so looking to this brave community for help/guidance.
Hello fILTERdOWN6389f7
A warm welcome to the group although i am so sorry to find you here - like you I have an active life and 4 grand children. My diagnosis ruled out surgery (I am a wimp and would have ruled it out anyway) so I went down the HT/RT route.
The same question you ask was asked a couple of days ago on this thread:
and if you look at the first post (mine) it give the treatment choices and the action i think you should take. I assume all the options are available in Spain.
I hope the above helps - if you need any further details or information regarding any of the options just ask - someone who has "been there - done that" will reply.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Thank you so much Brian - This is hugely appreciated and I will look at the post and ask questions, if I have any.
Cheers, J
Hi fiLTERdOWN6389f7, I was diagnosed with Gleason 7 (3 +4) and did not get enough information from Consultant to make the right decision and was steered down the surgery route,which I now regret.All I would say is make sure you get treatment plans for both surgery and radiotherapy,with side effects and how both will affect you and your wife,before making decision.
Hi Hibernian,
Thanks for replying - I would be interested in hearing more about your decision and the after effects.
I'm new to the forum, so not sure of etiquette and how it all works but would appreciate it if we could discuss more.
Thanks in Advance.
Cheers, J
Very similar position, age 63, my Gleason was 4/4 as it had spread to pelvic lymph nodes, but there was no evidence of it going further, been on HT for a couple of months, and will soon be going additional HT, arbitarone, will be going on radical radiotherapy in a few weeks, with hopefully a prognosis of long term remission/cure (oncologists words), was not given a choice, as it had spread locally, if I had been given a choice suspect I would have gone for RT anyway not looking forward to the after effects, but it is what it is, I wish you well
Hi , 56 years here , diagnosed in March, PSA 4.8 , T2 , Gleason 3+4
first thing I would say mate is to just take a minute and breathe , so much to take in and options to consider
my advice would be to take as much advice as possible and if you struggle with NHS advice and are in a position to get a second opinion privately , this doesn’t mean you can’t use the NHS but it does give you more opinions , I mention this as the NHS surgeon I saw was horrendous, I felt very much like a number with him that would be on a conveyor belt , he advised that he couldn't save the nerves on one side and just wasn’t optimistic , I then saw 2 other well respected high volume surgeons privately who both couldn't have been more positive in out come if I had surgery including telling me I could have full nerve sparing
I can’t comment to much on Oncology as they were nice enough but it wasn’t a route I wanted to follow
i was also offered AS but didn’t feel comfortable with that either ( I’m glad I didn’t as after surgery pathology showed the tumour was much larger than 2 MRIs had suggested and was closer to the edge, the percentage of pattern 4 was also 3 times higher than previously advised )
don’t rush mate look at all options and consider what is best for you , if surgery is an option you might want I can only suggest to research surgeons who do high volume surgery,
everyone is different and there are no guarantees but can only say I had full prostatectomy 6 weeks ago and I am more than happy with my decision , I have been dry since catheter removal and ED isn’t looking that bad , the actual operation recovery was fine , no real pain at all , only downside and annoyance for me was the catheter for 12 days
the key though will be the PSA test in a few weeks that needs to be undetectable
wish you well and any queries just shout
Nick
Thanks so much for taking the time to come back to me - hugely appreciated.
HT hasn't been mentioned to me yet, so after I get the results from my abdominal CT scan and bone scan, I'll enquire further.
Hope the after effects are minimal.
Cheers, J
Hi.
Thanks so much for all the info. that was very illuminating.
My initial thoughts have been RT, (HT hasn't been mentioned) so I'd be very interested in discussing your decision to go down the surgical route - I need to get as much information/opinion as possible.
If it's alright with you, I'll drop you a line (don't know what the process is yet but will investigate).
Hope the next PSA test comes back clear!
Cheers, J
Hello J (fILTERdOWN6389f7)
If it's alright with you, I'll drop you a line (don't know what the process is yet but will investigate).
Here's a link for you
I have my personal message box open so anyone on the Community can message me.
I hope this helps.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Hi mate , yes no problem I’m more than happy to help with any queries you have if I can , thanks for good wishes on PSA
Nick
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