Hi All,
Having read through many posts I realise that I have got off rather lightly compared to many others.
I am 75 years and nearly 2 years ago, I had a annual check up, my PSA level was 1.9. However, I was experiencing pain when urinating. Luckily, I was sent for a CT scan but, because of my low PSA level I had to wait 5 months. I wasn't feeling too bothered until I received the results. The scan found 2 tumors fortunately contained within my prostate. But, the biopsy revealed a Gleason score of 9.
I elected to have radical prostatectomy. However, I caught Covid and as it risky to have an op within 6 weeks of of catching Covid the doctor suggested 42 sessions of Halcyon radiotherapy and 2 years of antihormone treatment, Eligard. I will soon have my last injection and, like tunygbur I want to know what level is a 'good' level. When I asked my current eurolgist she said that it will be controlled by PSA level. I went away and thought about that relative to my PSA of 1.9 2 years ago and 1.3 when I later had a biopsy. Basically, I dont know what PSA level is safe for me. And, more importantly I don't think my urologist does either. BTW, I am living in Germany.
Hallo (Golfer758dc0a2)
Welcome to the group, and also the Gleason 9 club!!
In the UK the general rule of thumb for people on HT/RT is that your PSA reaches it's nadir (lowest) reading about 18 months after radiotherapy finishes and intervention is required if:
* Your PSA rises in 3 consecutive tests or
* Your PSA rises +2 whole points.
Your low PSA at the start and low tests along with being a Gleason 9 makes me wonder if you are a "low secretor" - have you run this past your oncologist?
Best wishes - Brian.

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Hi G
As has already been said stable is what you are looking for.
You may find that when HT stops it rises a little and sets a new standard level so will be difficult to tell for a few PSA tests.
So after the first year you should understand it more.
There is no set figure for PSA after Radiotherapy, mine was 1.33 but I know that others have had much lower than that.
Anyway for now you can relax
Best wishes
Steve
Hi Golfer758dc0a2 you have had some great replies, my word of caution is that you don’t seem to register PSA at a normal level, so I think you are what I have seen described as a low secreter and maybe the normal rules don’t apply. Perhaps one of our experts on here might be able to add more.
Best wishes, David
Please remember that I am not medically trained and the above are my personal views.
Thank you so much for taking the time to reply. It's very useful to know how the NHS monitors those of us who joined Gleason 9 club.
Thank you so much for taking the time to reply. I'm on the same page as you. However, I am with the help of this forum hoping present my case to my eurologist in November.
Thank you so much for taking the time to reply. That's useful data. I am relaxed
Thank you so much for taking the time to reply. Again, more useful info.
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