Hi All,
Having read through many posts I realise that I have got off rather lightly compared to many others.
I am 75 years and nearly 2 years ago, I had a annual check up, my PSA level was 1.9. However, I was experiencing pain when urinating. Luckily, I was sent for a CT scan but, because of my low PSA level I had to wait 5 months. I wasn't feeling too bothered until I received the results. The scan found 2 tumors fortunately contained within my prostate. But, the biopsy revealed a Gleason score of 9.
I elected to have radical prostatectomy. However, I caught Covid and as it risky to have an op within 6 weeks of of catching Covid the doctor suggested 42 sessions of Halcyon radiotherapy and 2 years of antihormone treatment, Eligard. I will soon have my last injection and, like tunygbur I want to know what level is a 'good' level. When I asked my current eurolgist she said that it will be controlled by PSA level. I went away and thought about that relative to my PSA of 1.9 2 years ago and 1.3 when I later had a biopsy. Basically, I dont know what PSA level is safe for me. And, more importantly I don't think my urologist does either. BTW, I am living in Germany.
Hallo (Golfer758dc0a2)
Welcome to the group, and also the Gleason 9 club!!
In the UK the general rule of thumb for people on HT/RT is that your PSA reaches it's nadir (lowest) reading about 18 months after radiotherapy finishes and intervention is required if:
* Your PSA rises in 3 consecutive tests or
* Your PSA rises +2 whole points.
Your low PSA at the start and low tests along with being a Gleason 9 makes me wonder if you are a "low secretor" - have you run this past your oncologist?
Best wishes - Brian.
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