Newbie in South Wales - CPG1 (Gleason 6 (3+3), PSA 6 and T2CN0M0) - so far

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Hello All

I've been reading a lot and commented a few times.  But I've been waiting for the biopsy result, which was today.

I'm heading towards Active Surveillance for now and I'm relieved but also think I'll re-evaluating how I now feel about my dark passenger sat like a terrorist waiting with a bomb in my prostate, and he could be there for quite a while. On balance, I'm happy to keep him there for now.

As only one half of the prostate is affected, I'm also going to re-read the focal trial collateral, as my circumstances will allow me to relocate to London if necessary.

For fellow newbies, my strategy so far has been to learn a little and often.  I think that for us to at least understand the headline terms and acronyms empowers us to participate in the conversations with the professionals, and enables us to ask better and more nuanced questions that reflect our circumstances. 

I'm single, gay and carrying a few other co-morbidities, like so many others in their late 50s.  I'll be posting some topics that also reflect these additional facets, as I get ever deeper into the complex and yet so helpful topics others have posted or commented upon.

Regards

Jeff

  • Hello Jeff

    Just a quick one from me - as others will know I am not a fan of AS - I have seen people go from AS to Stage 4 very quickly. Two points i would make (and don't forget I am not medically trained).

    * 1

    As only one half of the prostate is affected,

    T2C - The tumor is in both lobes of the Prostate.

    * 2

    You have a few other co-morbidities and you are in your late 50's. Personally as the Prostate Cancer isn't going away I would deal with it now - the younger you are the quicker you recover from any intervention.

    Only my personal thoughts - I hope they help.

    Best wishes - Brian.

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  • Thanks Brian.  I really appreciate it, I believe the biopsy will re-grade it to T2A, as the 3 cores were positive on one side.  But the risk of any more aggressive small tumour being missed is the dark shadow and I continue to read back through many posts.

    I feel like I have breathing space to now consider options. I'll post some new topics.

    Dissenting voices in these matters can make the difference.

    Jeff

    Wales

    October 2025 Biopsy - Gleason 6, and CPG 1; July 25 PSA=6; T2A N0 M0. Active Surveillance. 

  • Regraded to T2A N0 M0.  Active Surveillance begins with 3 monthly PSAs.

    I'm feeling lucky that so far I'm diagnosed at the least worst end of the disease's spectrum. 

    Jeff

    Wales

    October 2025 Biopsy - Gleason 6, and CPG 1; July 25 PSA=6; T2A N0 M0. Active Surveillance. 

  • Hello Jeff ( 

    Thanks for the update Jeff. I wish you many more low PSA's.

    You know where we are if/when you need us.

    Best wishes - Brian.

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    Strength, Courage, Faith, Hope, Defiance, VICTORY.

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  • Hi Jeff

    I'm like you. A small amount of G6 on one side. I've been on AS for 9 years. I started on 3 monthly PSA tests but now it's 6 monthly and an MRI every 2 years. No more biopsies. 

    As you say, the least worst end of the spectrum. We're fairly lucky.

    Best wishes 

  • David, thanks for sharing.

    Like it or not, you've just become an idol to follow ;-) - my naive hope is AS for the foreseeable future.  My uncle David died of a heart attack, and with (ie not from) PCa. A low bar maybe, but one I'm aiming for; well, to die in decades to come with, not from, PCa.

    I think I've already started feeling some guilt on receiving a least serious diagnosis. I'd made plans on Gleason 7, and more radical action for 8+.  For now, just theoretical deliberations, usually made at 3-5am!

    It's heartwarming to see the partners, wives & family logging in and posting.  For this grumpy older man, I'm single, and these forums I think, have even more resonance for those without a significant other. 

    Jeff

    Wales

    October 2025 Biopsy - Gleason 6, and CPG 1; July 25 PSA=6; T2A N0 M0. Active Surveillance. 

  • Thanks Jeff

    I have a similar outlook to you. I have high blood pressure and I take medication for that. My dad had strokes and died aged 54 of a heart attack. So I'm more worried about hypertension than low grade prostate cancer. 

    I believe as we get older we have to expect some things to start going wrong. We are all mortals. AS for my low grade prostate cancer is just something at the back of my mind. Try to enjoy every minute of our time on this earth.