Active Surveillance

Hello Nick (NickNick101) 

Well, you look an ideal candidate for Active Surveillance (I never thought I would say that as I don't believe in AS!!) and my thinking behind this is the low PSA figures throughout your journey so far.

So a couple of questions tomorrow for me would be:

* is it possible I am a "low secreter".

* Yes another MRI would be a good idea (I think the NICE guidelines may overrule this request).

NICE Guidelines - Prostate Cancer Treatment. (See 1.3.8 & 1.3.13 & 14).

So good luck tomorrow - do let us know how you get on.

Best wishes - Brian.

Hi Nick

Just a quick question 

Am I right in thinking u had a MRI in 2023 and 2024

9mm showed in 2023, if u had one in 2024 what size then

Steve 

Thanks Brian.

Hi Steve,

Here are extracts from the 2 MRI reports. Top one is the 2nd one done.

Regards,

Nick

Ok Nick 

So not gone up that much , all looks ok.

Just to let u know that over my 4 years on AS my tumour or the largest went from 3 mm to 13,mm before treatment started.

So u need to keep your eyes on it , your PSA seems still low, mine kept going up while tumour size was increasing.

Just make sure you keep checking, if  the tumour getting near the capsule edge cos that's the time to do something but then they should know that

Best wishes 

Steve 

Hi Nick

I literally just found out today at 10am that I'm graded Gleason 6, CPG1, based on PSA of 6 and one confirmed tumour in one side.  I'm now a shouty advocate for early PSA - until we have something better - because without that, I'd be in blissful ignorance and no significant symptoms for maybe years to come.

No MDT meeting yet, but AS appears to also be on my path for a while.

So, your topic is hugely helpful - and the replies, thanks especially Millibob - as I'm now pondering and researching frequency of AS actions etc.  Of course, I'm especially interested in those who rightly challenge the risks of AS and getting caught out.

If AS means an extra year, or a few more years without HT or more radical treatments, it's what I'd hoped for.

My (new-to-me) urologist already said that immediate re-imaging or biopsy aren't called for yet.  So, it'd be great to hear your urologist's take on next-steps imaging as things develop.

I now see that my summary from the Urologist is a perfect facsimile of the NICE guidelines for CPG1.  Wished I'd read them before the meeting - doh - but again, the power of these forums can't be overstated enough.

Cheers

Jeff

Hi Jeff

Everything looks ok for AS.

Just something to remember, MRI should tell u size of tumour and location within capsule , always worth knowing that although obviously if they were concerned treatment would have been suggested.

All the best

Stevr

Thanks Steve. Good info to have.

Regards,

Nick