Just diagnosed

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Hi. New to all this so please bear with me. Just been diagnosed and am having my bone scan this week .

I'm reading all the info given to me, as been offered hormone treatment with radiotherapy or surgery.

Just wondered if anyone has any things that need to be taken into consideration beyond the information the hospital gave me ? 

Thank you.

  • Hello  

    Welcome to the group - the question you have asked is a very personal question to you and your partner. HT/RT or Surgery.

    The best way to find an answer is to get yourself a pen and paper, do your research from trusted sources (Cancer Research UK: Prostate Cancer UK and Macmillan - not Dr Google) and list the pros and cons for each treatment as to how they would affect you and your partner. If you look at some posters here they have a diary of their journey - you can read that by clicking on their name or avatar. (I went down the HT/RT route but also had other issues to deal with).

    I will start you off with a few links:

    Prostatectomy-for-prostate-cancer.

    Hormonal-therapy-for-prostate-cancer.

    Radiotherapy-for-prostate-cancer.

    It would help us to help you if you could add your PSA readings Gleason Score and TNM. Subject to those figures you may be suitable also for:

    Brachytherapy-for-prostate-cancer.

    That should start you off - feel free to ask any questions, however trivial they may appear.

    Best wishes - Brian.

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  • Hi  - if you click on my name, there’s an example of a journey.  Click on as many names as you wish on this forum - some post detailed journeys and some don’t - so do your research.  As you get more of your personal details, add to your own profile (or ask a detailed question). Research for yourself and self advocacy with the medical profession are both crucial.  AW

  • The start point is lots of tests and scans to give you a diagnosis, which will take time. The couple’s disease is found to change you more than you think but as time goes on it’s just the way it is. When you have a diagnosis you will get a treatment plan and hormone therapy will be there to slow everything down and give you a chance to catch up with the choices to be made. That’s where we come in and hopefully help you in an experienced supportive way to answer the new questions you’ll have.

    This will affect everyone you know not just any other half you have so brace yourself for a new you. But fear not because we have been there and will help you when you ask for help. Take care, see you soon and try to stay patient for the data that will direct your path.

  •   I totally agree with everything you have said. The best part being:

    But fear not because we have been there and will help you when you ask for help.

    I didn't have the choice of surgery, so I went down the 'Hormones and Radiotherapy' route.  I don't regret that decision, and I am a totally different person on the other side of the treatment.  I was caught at T2, and am now 3 years into Remission.

    So,  it doesn't have to be all bad news.  Yes I still have E.D. from the Hormones and Radiotherapy.  But the best thing to come out of it are my 'empathy levels'.  They have 'sky-rocketed'!! 

    Brian and  are a great help. 

    Even if you just want a rant, just log on and post a message.  Fingers crossed for your bone scan this week.

    Take care, and keep us updated with your journey.

    Steve (SteveCam)