End stage prostate cancer

Hi Cathy,

Thank you for sharing your story as it’s a brave thing to do, I can’t imagine at this point how it feels be facing this part together, but you are not alone and we are here for you, Wishing you much love and strength.

Lx

Hi Cathy22,  and a warm welcome to the forum,  l am so sorry to hear about your husband, and as someone on the same journey can understand what you are both going through, though appreciate your ASD will make your journey unique to you. I love the way you are both dealing with your prognosis, making the most of what you have is so important. Cathy radium 223 is more than just for pain relief, it also attacks the cancer and strengthens the bones as well, my best wishes to you both and hope you make many more wonderful memories, take care. 

Eddie xx 

Hi Cathy22,

Your post gone straight into my heart. I salute your bravery and admire your attitude. 

Lots of hugs and love

Dafna

Hi Cathy22.

Good morning it's great to meet you today  sorry it's under these circumstances though!!

OMG I am so sorry to hear about your husband's prognosis I am also on a similar journey as mine has spread to my bones 

I completely understand your current situation as we have to live and enjoy every single moment and day.

Mine came out of the blue last June 2023 and knocked us for six but we pulled ure selves off the floor.

My PSA was 1000+ to start with but has now come down to 1.79 but it is on a n upward trajectory unfortunately.

I do hope that you both continue to enjoy every day and please come back to me if there's anything that I can help you with??

Prostate Worrier.

 Cathy22 , very sorry to hear your story and very brave of you to share it with us.  I hope the injections help with his pain relief.  None of us know what the future holds and I admire your attitude to be grateful for the time you have spent together and be positive about making the most of the time you have left.  Hugs to you both.  David

Hello Cathy22 .

I am sorry to hear that your husband has been given the news that those of us who have loved ones with an advanced cancer diagnosis fear getting. As Eddie has said, the Radium 223 can reduce pain and extend the life whilst improving its quality, particularly if your husband is able to take 6 sessions.

You have highlighted the need to apply for benefits under the Special Rules and I hope you hear soon. Don't forget that if your husband is eligible it might also open up additional carers allowances through an underlying entitlement for you.

I admire your zest for life and hope that you can still make memories together. Love and hugs to you both.

Hello Cathy, welcome to the forum. I’m so sorry to hear of yours and your husband’s situation. It’s the stage all of us wives here dread reaching. I hope that you can find support at home and also here as you go forward. You are so very right - making each and every day count is the right thing to be doing. I send hugs and good wishes to you both 

Hi Cathy 

I am really sorry to seeyour post and reading that you have only had a short time since diagnosis which is also very hard. 

As a Welfare Rights Officer of 17 years I just wanted to say that I can’t tell you how many men I have encountered over the years that have been granted Disability Benefits for Prostate cancer under the Special Rules for the end stage. 

I have seen so many on the 3rd anniversary of the award of the benefit to renew their entitlements and some even on the sixth anniversary.
So what I am trying to say is just because you get the benefit under these rules many go on the need these renewing and  are living an awful lot longer. I am not saying this is the case for yourself necessarily and your own Dr is the judge of your prognosis but just to say don’t automatically think if your nurse or doctor signs this form for you that is always the case that your time is definitely limited to 12 months 

Very Best Wishes 

A 

I'm in a similar position to you.20 yrs together and he has grade 4b prostate cancer  given 1 to 4 maybe 5 yrs and going for another round of chemo leading to Radium if the nodes with in the right size range. we are 3 years in and I'm really feeling the stress lately.Its drained me of all my energy. Feel free to PM me if you need to sound off.  Sending love.

Hi Cathy,

I was diagnosed at that stage a couple of weeks before my wedding. If I do get my SR1 I'll look at it as a positive, I can claim on my life insurance before it runs out, I can claim benefits etc. I can stop thinking about those things and get on with proving them wrong. My previous wife was given the SR1 and went on to live for 5 years. I'll be starting chemo soon which I'm not looking forward to but it's all part of the fight for more good days. 

Stay positive enjoy every moment you have together. Sending love to you both 

Andy