Dad’s new diagnosis

  • 2 replies
  • 191 subscribers
  • 43 views

This is a place I never thought I would be writing…

My fit and healthy 62 year old dad has recently been diagnosed with prostate cancer. PSA 4.7, T2 , Gleason 4+3 and currently undergoing a follow up MRI to check a ‘glare’ on his spine which his doctor has said is a likely false positive. 

Similarly to everyone here our world has been turned upside down and we are now navigating a new path and trying to work through the best treatment options which all seems very overwhelming. 

I just wondered if there are any positive stories here, what treatments people have had and how they found the side effects 

  • Hi SK3 and welcome 

    Stats not too bad really, yes probably a false positive.i

    Easiest options are possibly active surveillance or Radiotherapy.

    My stats were similar when first diagnosed in 2013.

    I went for 4 years on AS  followed by Radiotherapy which was easy, side effects only lasted a few weeks.

    So it does sound like easy to treat and potentially curable.

    But , see what others say as well 

    All the best 

    Steve 

  • Hi SK3

    So sorry that you have ended up here on this forum, and I do hope that your Dad is doing OK.

    The worst part is the initial diagnosis and then the waiting for the MDT results (Multi Discipline Team). This can seem like an age, but once there is a clear path ahead and a treatment plan formulated things tend to get a little less stressful.  But we all know that it is stressful - especially on nearest and dearest. Do take the opportunity to speak to people if you have the chance, and definitely avoid social media and Google for advice.  There is good info here on the Macmillan site and there is excellent info on the Prostate Cancer UK website - the Toolkit is brilliant.

    If you have a look at the round symbol beside the names of the people contributing and click on it you can get to our profiles and then get to see the stories behind the people.

    I too was fit and healthy at 68, asked for a PSA last August and then had a bit of a shock with the result (953) which threw us all into turmoil, but as I said having a plan then commencing treatment things are getting better,  with my very high PSA now undetectable. The trick is to keep being fit and eating healthy - and getting some support for the mental side of the problem. It can be tough but talking and therapies can help (I keep mentioning the Headspace app which is a  paid one but can be helpful - the Coping with Cancer course helped me.)

    Others can comment better on the potential position, but try and get all the questions into a note book for when going to the consultant appointment - and make sure Dad has someone with him when he goes to listen/takes notes as well. The publications from Macmillan and PCUK do have sections on questions to ask so make use of these.

    I am heading for my last round of chemo next week, something which seemed like an age away when I started at the beginning of February and maybe onto radiotherapy, with continued hormone therapy for life. I am keeping fit (just back from taking my daughter's dog for a walk!) and am eating healthy, so it can be done!!  I am treatable but not curable but am looking forward to years ahead with the grandkids!

    All the very best with the next steps,

    KrisPy