Husband just been diagnosed

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Hi all,not a group I ever expected or wanted to join,but I'm glad I've found this forum. Hubby got diagnosed on Friday,he's only 52, PSA of 15 but it put him on the 2 week pathway, had MRI and biopsy which came back with Gleason score of 3+4 grade 2,  9 cores out of 22 came back positive for cancer,MRI shows it's contained with the prostate itself. Hubby is so matter of fact about it,but I've not taken it well and Google is not my friend at 2am!Tried talking to him but all I get is a shrug of the shoulders,I want to do everything I can to help and prepare him. Had meeting with consultant on Friday who gave him 3 options, surveillance,removal or radiotherapy, although she thinks surveillance may be taken off the table after MDT meeting on Thursday because of his Gleason score. This is all so new and confusing. 

Thanks for anyone who has made it to the end of this!

  • I’m so sorry you’re going through this. Right now you just need to wait for the MDT meeting on Thursday where the team of doctors will review his results. Once they officially rule out surveillance you and your husband will just need to look at the other two options which are surgical removal or radiotherapy. You’ll meet with the consultant again after Thursday to make that final decision. For now try to stay off Google at 2am because it’s only going to scare you more. Your husband is probably just shrugging it off because that’s his way of processing everything right now, so just take a deep breath and take it one step at a time together.

  • Definitely his way of processing it and as he keeps telling me,what will be will be and he'll just get through it! So wish I could be more like that but I need to know everything about everything that's happening! Think I'd feel better if we actually had appointment scheduled for after MDT meeting but he doesn't yet. Think in his mind he'll go down removal route, but that might change

  • "It sounds incredibly tough balancing his 'wait and see' approach with your need to know the facts. Since he is leaning toward removal but hasn't booked the follow-up, maybe you can ask if he'd mind you calling the coordinator to get a date secured. That way, your need for a plan is met, and he doesn't have to carry the stress of organizing it. What do you think? I have some suggestions though it's not something I can type on a public forum. It did help me

  • Hello  

    A warm welcome to the online Community, although I am so sorry to find you joining us.

    Your husband is a typical man!! He's at that stage where he will continue to get on with life until treatment starts to kick in and then will realise he's got cancer!!

    I think with a PSA of 15 Active Surveillance will be off the cards (the 9 out of 22 positive cores won't help), so that leaves surgery to remove or radiotherapy.It's important to remember this cancer and the possible side effects make it a "couples" cancer. There's also a third treatment - brachytherapy which would be suitable - it's probably not been offered because your NHS trust don't offer it - but if he's suitable then he can have it - he may have to travel.

    My advice is to get a pen and paper (or a spreadsheet), list each treatment and the possible side effects as to how they would affect you BOTH. Use trusted sources for your information, Cancer research UK, Prostate Cancer UK and Macmillan (not Dr Google). I will start you off with 3 links:

    Prostate Surgery to Remove.

    Prostate Radiotherapy

    Prostate Brachytherapy.

    I hope this helps - remember it's his choice of treatment. Please feel free to ask any questions however trivial - there's plenty of help available on the group.

    Best wishes - Brian.

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