Hello, so glad I found this group, its the first time I've ventured to a forum of like minded people, to gather as much information as I can. I am 81years old, I was diagnosed with metastatic prostate cancer which had spread to my spine last October. I had PSA levels in the thousands, a gleeson score of 5+4 (9). After ht, calcium and vitamins D3 my PSA levels are down to 19.7. I am still catheterised but meeting with surgeons tomorrow with a view to making me catheter free to pave the way to radiotherapy. Advice welcomed on choice of questions I should be asking from people who have been on the same pathway. Thanks
Hello Dixxy174
A warm welcome to the online Community although I am so sorry to find you joining us.
You look to have done really well on the Hormone Therapy and I trust you are able to cope with the side effects.
What would I be asking the team if I were in your shoes?
* The cancer has spread to my spine - what are you doing in the way of checking for SCC (Spinal Cord Compression)?
* I have a catheter - is it going back after Radiotherapy?
* I assume you have issues with the "waterworks" - I would be asking the team how they can improve the flow?
As we are all different, there may be other things you want to ask so make sure you have a list. Here's a link to some questions you may want to consider:
I hope the above helps, feel free to ask us anything and do let us know how you get on tomorrow.
Best wishes - Brian.
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