Hopefully you will have found comfort and support from others on this wonderful group who are going, or have gone through what you’re going through and understand.
Falling apart is normal…I know exactly how you felt and are maybe still feeling. Hang on in there…..whatever gets you through this is OK, we all cope diferently. My husband was diagnosed last June with prostrate cancer, which has spread now to his lymph and liver. We are just going through his first chemo cycle and he is coping well. It does get better…try and hold on to that will find strength you never knew you had. I cope by living day to day…it was so hard at first, like a tsunami wave coming over you, but it does get easier, honestly! I try not to dwell on the details too much, we try to find the positives wherever we can and find a new appreciation of our relationship that we didn’t have before.
wishing you luck on your journey…..and never feel alone, we are all here and will help and support you whenever we can!
It's bloody scary isn't it! My husband had prostate cancer three years ago and after treatment all going well but recently diagnosed with bladder cancer and awaiting an operation.
I too have today requested diazapam to assist me get through this as I cannot sleep. Lie awake trying to stay still so as not to wake him as he will then start to worry. Working from home today as waves of anxiety. I totally get if you feel overwhelmed. I think it is normal. I cannot cope now if my husband is not near and is apart.
You will pick yourself up ( if not all ready done...I see this is an old post) and I hope you and your husband are in a better place as your simple post made me realize I am normal. Thank you for that support.
Thank you went back to work for 5 weeks but back off work now I have realised I just need time out I can't do my very stressful job and be there for husband so I am concentrating on husband and get myself mentally well
sorry to hear that your cancer isn’t localised either…but stay positive, there are effective treatments out there…
my husband been on HT since last August, it lowered his PSA but he didn’t have a scan till January when they found it had spread…even while he was on HT…..his cancer isn’t PSA secreting apparently so blood tests which showed his PSA declining from 343 to 0.1 weren’t indicating what was happening. Anyway, after it was picked up after CT and MRI scans he has been taking Darolutamide alongside HT and now is in the middle of his chemo with Docetaxel. Fingers crossed it will do it’s magic…it’s a combination our consultant termed a three pronged attack…
I hope you get the treatment you need too….good luck! If I can help any more feel free to ask….we’re all in this together!
I am so glad to have found this forum and your post. My husband (57) was diagnosed this week with advanced non curable prostate cancer. This has come completely out of the blue and with no warning so has been a huge shock to us both.
He is currently in denial mode and I have gone into full on panic mode. I haven't stopped crying since. When he left for work this morning he said "have a lovely day without me". This is something he has said a hundred times over and we normally joke about it but this morning it was just too much - the tears haven't stopped flowing since.
His PSA score is 70 and the cancer has spread to his pelvis and spine. He has had a hormone injection and we are now having to wait for the biopsy results to be able to see the oncologist and discuss treatments. The consultant seems to be saying that surgery to remove the prostate is pointless.
Strangely, I sat next to a lady in the waiting room of our local vet surgery yesterday who told me her husband has terminal cancer and we got chatting about my situation. I felt so much calmer having someone else to talk to outside of the family who understands how I feel, and I'm hoping this forum may be helpful too.
Is there anyone here who also has incurable prostate cancer and what treatment options did you look at?
Thanking you all in advance for your support and guidance.
Hi MamaS .A very warm welcome from another wife whose husband has incurable cancer and he was diagnosed in 2020. The first thing to do is stop panicking, although we have all been where you are and quite understand what you are going through. The hormone therapy is the first step and this will put the cancer cells into hibernation very quickly, giving you time to have the rest of the tests and get a treatment plan in place. There are many options including radiotherapy, chemotherapy and some excellent new drugs on the market now, as well as a lot of follow on treatments if necessary. The one thing everyone will tell you is that it is essential for your husband to get as fit as possible in order to combat the fatigue which most men experience to a greater or lesser extent. The other essential is for you to look after yourself both physically and mentally as it can be a tiring journey. We are a friendly bunch who discuss all things prostate cancer as well as life in general and how we cope, coupled with a good sense of humour.
Please come back with any questions and let us know what your husband's stats are when you get them.
