Hello , I’m the wife of a newly diagnosed husband

The tablets are usually taken (Bicalutamide) in preparation for the first hormone injection. This is to stop tumour flare which can occur when starting the injections. Normally 14 days tablets, first injection, then tablets are continued for another 14 days followed by further injections every 3/6 months as advised.

Radiotherapy in my case will be started 3-4 months after starting hormone injections. I think this is the normal regime.

Depending on the risk profile of the cancer hormone injections may be continued following radiotherapy for up to 2 years.

Regards

Rob B

Hi AnneMarieH

My husband was diagnosed in November 2021 and we were both devastated. It’s the time of your life when you look forward to retiring and spending quality time together, and this jumps into the equation.

My hubby was put on Hormone Therapy straight away and then 6 months later he had radiation therapy . 
sadly, when he was diagnosed it had already spread to his bones so he gets lots of pain which some days aren’t so bad as others

Yes, it’s a shock sweetheart and we go through the ‘ why us’ but the only way I got my head around it was when I was walking on the beach and saw a couple our age holding hands, and I thought that lady’s husband could die in his sleep tonight and how devastated would she be.? 
None of us know the day or time and must continue each day as best we can .

I know it’s so raw and hard but this little community will be here for you both. Keep us informed. Big love to you both xx

I have just read your profile post and you are the same age as my husband, who was diagnosed in May this year. His PSA was 6.9 and after biopsy he was was diagnosed with locally advanced prostate cancer with 3+4 (7) N0 Mo. He opted for the surgery too and had this on 27th June. His PSA test is arranged for 16th August and hopefully the results will be as good as yours. Appears that his side effects are the same as yours, but hoping that the pelvic floor exercises do something for the urinary problem. Not sure if anything will solve the ED or size issue though as the surgeon pinched his nerve bundles as well as the prostate. 

Oh no that’s not good .Is he still suffering  with urinary problems . That’s what is concerning hubbie .

Fingers crossed for a positive result for you next month 

We are lucky I that it’s not spread to his bones . How did he find the HT and then the radiation . Did he have a choice of treatment .

Thanks for taking time to respond 

Thanks , it’s becoming clearer now . How are you now .

thanks 

Hi AnnemarieH

Yes he is suffering quite a lot. Some days are worse than others. He has a degree of control and he makes it to the toilet but there's always a bit of leakage.

Some nights he's getting up to use the toilet 7 or 8 times so it's affecting his sleep and he's needing to have a lydown in the afternoon. 

We did expect this and it early days so we are hopeful that the pelvic floor exercises will improve things.

As long as those results are good, it's a price worth paying.

I hope whichever treatment option your hubby goes for is successful x

Hi again

He started hormone therapy as soon as he was diagnosed and RT six months later .

Yes, he had a choice x

Hi AnnemarieH

I was diagnosed with PC in 2020 and last year my Gleason score was 5+4=9

I started Hormone therapy in October 2022 anc had 20 sessions of radiotherapy in February/March. I will continue on hormone therapy for another 18 months.

I found this treatment really straight forward. Everyone is different but the only side effects I have is hot flushes. There are things you can take to reduce them though.

I am now 59 and the oncologist says I have a good chance of a cure, I have to have 6 monthly PSA tests.

You can read my journey by clicking on the picture of my cat.

Good luck on your journey and hope this helps.

Regards

Peter