Hello , I’m the wife of a newly diagnosed husband

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We have just been diagnosed with High Grade Prostate with a Gleason score of 8.

we have been offered radiation and hormones or surgery.

My husband is 64 - we are numb and don’t know how we are going to make a decision. We are seeing the radiation team on the 10th August 

  • was that down to diet or just side effects 

  • Hi Annemarie

    It was diet. I thought a couple of glasses of wine and a few sprouts with my Christmas Dinner wouldn't do any harm. I was wrong! If I had to go to the hospital on Boxing Day it would have been impossible  

    Regards

    Stuart

    Trying to get fit again!
  • Hi

    I know its a shock but a grading of T2a N0 M0 Gleason 8 should be treatable with a good chance of coming out with a full cure. I am T2c N0 M0 and my next door neighbour had a similar diagnosis some years ago and has made full recovery and is currently cancer free. I am going down the RT/HT therapy path (no choice) and my neighbour did the same.

    I am currently on HT waiting for my course of RT. I'm 71 and have a good quality of life.

    Look on the positive side the cancer has been caught early and should be treatable with a good chance of a full recovery.

    Now you've chosen your treatment pathway and can start on the journey to recovery I'm sure you will start to feel more positive. The support I received from MacMillan has been fantastic and has helped me enormously.

    All the best

    Rob b

  • How long are you on HT before you start RT please / thanks 

  • I was diagnosed at the end of August and started HT almost immediately. RT started at the end of November for 7.5 weeks. HT lasted 2 years. 

    Regards

    Stuart

    Trying to get fit again!
  • I’m sure we were told 3 months HT , although hubby thought it was 3 weeks . Then 4 weeks RT Monday - Friday . No one mentioned 7.5 weeks 

  • I've never heard HT being so short a time period. Some are on it for life - not in your husbands case though his stats are too low. 

    From what I can gather 20 daily sessions of HT are the norm ( 5 days per week for a month) but with me the PC had escaped so the focus had to be opened making the RT weaker. To counter I had 37 daily sessions making the dose the same.

    Hope this makes sense.

    Regards

    Stuart

    Trying to get fit again!
  • I did think 3 months - tablets. Then RT then injections for up to 2 years..

    once the HT stops will

    all

    the side effects disappear 

  • Ahhh ok that makes more sense and what I experienced. 

    No once the HT ends the side effects won't immediately stop. My Cancer Nurse Specialist told me to expect at least 18 months although they do become easier.

    Regards

    Stuart

    Trying to get fit again!
  • Thanks for the clarification, it helps