How are you? How's it going?

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These are the friendly greetings that turn  PC sufferers into liars. Most people who ask these questions don't really want to know but you have to reply and the simple response of "fine, how are you?" turns as all into liars because "fine" we definitely aren't. 

I am 80 with advanced PC and Atrial Fibrillation which can't be treated because the drugs required would reduce the effectiveness of Relugolix.  My usual answer to people I know, but with whom I don't want to go into details, is either that I check each morning to see what is still working or that I am still upright and putting one  foot in front of another. Both honest answers but rather verbose.

I'd be very interested to hear how others respond to these greetings without becoming a liar.

  • Excellent question, I have a similar conundrum when I feel saying fine will be lying, I usually go for "right side of the grass" or "Still steaming a mirror" , and sometimes the Monty Python "I'm not dead yet". They all work well and usually bring a smile. 

    G

  • Hello  

    Yes, been there got the t-shirt. Friends who know me, know and we talk openly about it but sadly only someone else with their own cancer diagnosis really knows the truth. My two stock answers are "average" or "yes thanks - still got a pulse". to anyone I don't wish to engage with.

    In fact - it's a great place to introduce a blog from 2023:

     When good intentions hurt: Exploring Toxic positivity and conversations about cancer 

    and there's more:

     Toxic Positivity - Part Two 

    and even more:

     When good intentions hurt: Exploring Toxic positivity and conversations about cancer 

    and one last one:

     Toxic positivity and cancer: why listening matters .

    I am sure we have all had the "how do you manage?" - "how ill are you?" - "are your children helping out? - have you got a blue badge? - can you feel the cancer growing Grin?.

    Funny thing about me is I was unable to hide my diagnosis as I was in hospital and I decided I had to "come clean" with my group of so called "friends". One couple just vanished from our group and we later found out "they don't do cancer". Idiots! (I hope they have good medical insurance!).

    There you go - plenty of food for thought.

    Best wishes - Brian.

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  • Hi all

    Just adding in my thoughts - ghosting is another issue (like your "friends").  I have been away on a break with friends this last week and I have found it interesting how the various parties react/converse with me.

    Bizarrely I have had a couple of instances recently whereby I have been asked the usual HAY question and "You look well" , the conversation terminates and then I find out later that they have been interrogating my wife to find out what is going on... the difficulty seems to be talking to me about it (and I am quite happy to talk for ages about it!!!). This happens quite a lot with the female side of the equation - the blokes just don't seem to know what to say...

    Cheers

    KrisPy

  • Personally, I never mention it to strangers, I spend enough time talking about it with family and close friends, as well as it being in the forefront of my mind constantly.

    As a fellow stage 4 incurable, a more sensitive , (if that’s the right word), topic is how I interact with and feel when I meet prostate cancer sufferers who are curable. I totally understand this disease is a dreadful one no matter what stage you are but when I listen to their ailments and issues I just keep thinking “you’ll be fine mate, I’m probably going to die soon”. I hope this doesn’t upset anyone, that’s not my intention, it’s just that I wanted to air my frustration and feelings in probably the only forum I could. 

    best wishes to you ALL

  • I wanted to air my frustration and feelings in probably the only forum I could. 

    That's the great thing about this group - you can say what you want, you are among others who know, and it's a safe space. No one judges anyone here.

    Another instance of something that happened to me:

    I was doing my radiotherapy, sat in the waiting room, it was one of the later fractions and we had been having a debate on the group about should you ring the bell at the end of your 20 fractions. The bloke next to me started talking and asked about my visit -"number xx out of 20" how about you "5 fractions to extend my life" -  well that floored me, anyway we got chatting and someone rang the bell and we all clapped.

    The bloke next to me said "whatever you feel when you finish your treatment ring the bell for me - as I won't see this summer and will never ring it!

    YES I rang the bell and being on Hormone Therapy I was in tears in Reception - that was January 2023 - I often think of the bloke I met once for ten minutes.

    Life is so unfair, so cruel at times. - Lets all enjoy what we have and cherish our family and friends.

    Kind regards - Brian.

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