Hello, started my journey in july, I've created a bio for my experience so far. Relugolix started july 30 and straight away the main side effect was excessive sweating. They call it a hot flush, but to me a flush doesn't last 3-5 minutes!!
Bought evening primrose oil mid sept but not noticed any difference though the nurse says I have to give it 6 weeks, then try sage for 6 weeks then maybe consider tablets!
I'd like to say the sweats are slightly less intense, they can be every half hour, day and night, but as soon as I think that I get another!!
Difficult to know if I have other side effects as been an insomniac for decades and my bowels are normally all over the place!
Any other sufferers of the sweats and any tricks? I have a hand held fan for daytime, and a fan going all night - getting harder now the nights are getting colder as some sheets are needed - at times!
edit - just found a thread from 3 months ago on this subject but will still post this as an introduction from me!
Hi culbin
Welcome to the club nobody wants to join ( as we say on this forum-a lot, unfortunately).
I am on Darolutamide (tablet) as well as Zoladex (12 week implant) and have been having the sweats since I started about a year ago. Interestingly they dropped off whilst I was having chemo earlier in the year - but they are back with a vengeance now. These can be for several minutes and are “uncomfortable “… I try to look for triggers- so a short while after I have eaten a (hot) meal; a short while after I have had my meds are a couple of instances.
I ditched all of my quarter zip fleeces and now just use full zip ones, so I can adjust the layering for a bit of temp control. I also use a handheld fan and have a large fan in the bedroom (not my wife!).
Essentially I have just got used to it and roll with it..and also look for cooler spots!
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KrisPy
