Getting your records from the hospital

Hi David, not this time my friend, though I am on the naughty step far too often.

Eddie

Hey Eddie eddiel & David David2017 

We've all been there. Me included. Sometimes I type my posts and then read them again before posting. I am fully aware of the Community Guidelines and I think I am guilty of "stretching" them now and again.

We are all human - a few months ago I had a bit of a rant at someone who I thought was shall we say "taking the Michael" and I actually reported my own post but left it up - it was approved.

The Guidelines are there to protect everyone and ensure the Community welcomes everyone and not to judge people and I think on the whole the Community works well.

Thank you both for the help you provide around the Community - I know Eddie pops up on other groups apart from the Prostate group.

Kind Regards - Brian.

Hi Brian, thank you, the community works amazingly well, and I remember a youngish guy, maybe a year ago "ridiculing," our older members loss of intimacy, as if over 60s had no need for it, as much as I wanted to give him both barrels, after re-writing my rebuke to him 4 times, making it as tactful as possible, I sent it, and was enlightened, I write this because in all my time on the community, this was the only time I've come across anyone who hasn't warm, friendly and caring.PS, my friend, the LWIC forum is my forum, the prognosis is what matters most these days, but you guys mean a lot to me too,.

Eddie 

Hello Eddie (eddiel) 

For others reading this LWIC = Living with incurable cancer.  I have enough to do on here but you do find me all around the Community now. I sometime work the "New to the Community" but tend to step in on other forums where they don't have their own Community Champion.

Best wishes - Brian.

Hi Les ( Les s )

If you care to scan my profile by clicking the MAN logo beside this entry you will see where I am in the PC journey.

It's ironic that you should ask this question, I requested my records back in October? (I can check dates on another machine). Initially the hospital were very prompt with communication from their legal department requesting enough information from me to confirm that I was who I said I was etc. Then it rolled reasonably slowly as my Trust have not got around to digitizing many documents so they had to be gathered from various parts of the hospital and photo copied!

In the period up to late December I had received a pile of copied document and had been given access to a password protected folder on a NHS server which provided me with a download of my digitized records and scans for which they provided software that has enabled me to read / view them. 

All good you would think until I realised that there should be scans from my radiotherapy treatment itself which had not been sent. This is where it has now stalled as the RT department don't seem able to find a way of sending me these two hundred and fifty (yes 250) scan files and they openly admit that no one has ever asked for them before.
They admit that they are obliged to find a way of doing it and are working on the problem.

Like any other organisation which holds personal records they have a legal responsibility to provide you with the records in line with the GDPR (General Data Protection Rules) and there is a time frame in which this should be responded to although there are certain excuses that they can use to stretch that.

As I have a consultation with the PC department next week I have offered to take some type of memory device for them to download the files to if it is any help, as yet no progress on that.

Rod

If you have your NHS details to hand, you should find everything here https://my.patientsknowbest.com/

Hi MrsG14 are you replying to me?

If so I would love to know more.

Hello MrsG14 

MrsG14 said:

 https://my.patientsknowbest.com/

As far as I am aware this is a commercial system used by very few health authorities and although it's approved by the NHS isn't for me.

Best wishes - Brian.

Hi Eddiel,

Back in my younger days (yes I can still just about remember them) when my hormones were raging I certainly had this opinion that older people 50+ would no longer have any desire for intimacy but instead were happy with companionship.  It was only when I passed that age that I realised what a lot of tosh that idea had been.  Even so, there was no reason to ridicule, so shame on them.

I think it must be a generational thing in the same way that music nowadays does not seem a patch on the 60's. 70's & 80's.

Best Wishes

Brian

Sorry, yes I was replying to you. MacMillan recommended https://my.patientsknowbest.com/

Our NHS trust use this system and basically all my husbands results and notes are here. Go to the site and try and register, it might all be already there.