Incontinence

Hello Winchmoma 

Very early days and I can understand that he wants to go out and about again. I haven't had surgery but I had an indwelling catheter for 10 months. When the catheter came out and I had my TURP operation I had to learn to wee again and pads and pants were on the agenda.

Here's a link to a cracking post bu Community member Huffies you may find helpful:

 Pads and what you need to know 

I felt great and confident going out with either pads or pants as no one knows you are using them. 

I hope this helps.

Best wishes - Brian.

Thanks. If it was just the pads and dribble it wouldnt be so bad. But its the constant need to go to the loo. We would barely get round a shop then need to go again. Popping into Aldi was a chore! 

Hello Winchmoma 

Ah, I see your problem. Has he been told that he needs to practice his pelvic floor exercises, this will enable him to regain control a little quicker?

Once he's up and feeling more confident we have details of the "Toilet Card" here and it's a good idea to buy a "Radar" key - this is the one that opens disabled toilets.

Link here:

https://www.macmillan.org.uk/cancer-information-and-support/bladder-cancer/using-public-toilets

I hope this helps.

Best wishes - Brian.

I am up, sometimes a dozen or so times during the night, my night being 6 or 7 hours, I'm coming to the end of my radiotherapy and it getting worse, I drink around 2 litres a day and for for my fraction have to drink 600ml, to start with it was just over a litre, about 2 hours after the treatment I need to go to the loo very very frequently for about 4 hours.

My team say that this will quickly calm down once my treatment is over.

At the moment I'm lucky as I have been staying in patient accommodation, an ensuite room. When I get home it will be a race down the stairs and along the hallway to put toilet.

Tiredness and legathy have descended upon me over the last 24 hours.

If this continues it will impact my daily life immensely, for how long worries me.

Hi Safeways,

The RT can tend to irritate the bladder, & that along with the amount of fluid you are drinking at the moment is affecting the number of times you need to pee.  After all, what goes in must come out.

I well remember that after each RT session finished the need to rush to the loo & then again about 10 or 15 minutes later.  Where we parked the car was on the opposite side of a large hospital site so the 2nd visit was achieved on the way back to the car park. 

As your team have said, things should settle down once your treatment has finished but if not then let them know. 

The good news is that you have nearly finished & will soon be home again.

Best Wishes

Brian  

Once you have finished with your RT it will eventually settle down - how long it takes varies.  I use a bottle during the night so that I do not have to go to the bathroom - I have two just in case.  find out if your hospital has a continence nurse as they will be able to help and possibly prescribe pads for daytime use.  I never drink anything after 6pm and have been on decaff tea and coffee for years as always had an overactive bladder.