This is for anyone who can't keep on the topic. It's hard not to stray, but if we have 'no specific topic ' we can't go off topic.
It is good just to be able to wander and talk about other things.
I could have named it 'Waffle'. Then I couldn't go off topic.
Cheers Steve - Not quite shopping at Next for my dresses but - yes I have issues like everyone else but I prefer to take the bull by the horns if you know what I mean. Right from my initial diagnosis I thought - this bas**rd (no more naughty corner for me!) isn't going to beat me!!

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Thank you, Brian. I’m not sure whether or not they are treating my husband’s lymph nodes - something to ask! The urologist on Thursday said that his cancer is intermediate but they are treating it as high ? But that he falls into a grey area. The oncologist said similar but then said it was for my husband to decide but they would discuss it later after the RT. Obviously my husband has the ultimate decision but I would like to be sure that he has all the facts so he can make an informed decision.
I hope your last week of RT goes well! How is the fatigue? We start on Friday!
Good morning all, just been catching up on you posts. In a way I was lucky didn't have any decision to make I was to far spread, my wife always comes with me for meatings, because I forget things, I hope treatment goes well for you all.
Morning WW - I understand they are treating mine as "high" because of my Gleason 9 (it does go to 10!!). There is a cracking leaflet from Prostate Cancer UK called "How Prostate Cancer is Diagnosed (you can order this from the webby or print it off) and this gives all the details of how the Gleason score and all the other gradings and numbers and letters are calculated and what they mean.
On my oncologists letter and on my timetable from Christie's (our specialised cancer hospital) for each visit it states - Action, Prostate + Nodes VMAT + Imaging.
For me there's no question I am happy to keep on the HT if it's still doing the business.
The RT is going well - 4 left - I am "tired" but carrying on as normal for a 67 year old in full time Self Employment - I had a lay in one morning. As stated earlier though, the toilet is my best friend at the moment!!
Good luck Friday, only one day in the week to start, I know it's personal choice but if I was your other half I would be going for the years extra HT.
Kind Regards - Brian.

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Strength, Courage, Faith, Hope, Defiance, VICTORY.
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WW,
We are all rooting for you and your husband on Friday.
This time next month they will all be finished.
Steve (SteveCam)
When I was originally diagnosed in 2018 I was told 3 years of HT as I was T3A N0 M0 with a Gleason score of 4+5=9. We moved to a new NHS trust in the first week of lockdown and it took months for our medical notes to be transferred. In late 2020 I got a letter from the new Oncology department saying that I should stop the Prostap injections after 2 years as that was their policy.
I still had the number of the first Oncology Nurse Consultant who I had got to know very well before we moved and he remembered my case. He said that, if I was tolerating the HT, then he would advise stay on it for the full 3 years based on my original stats. I decided to go with that choice and had my last injection in June 2021.
Throughout the 3 years of HT my PSA was undetectable but has now crept up to 0.2, so currently in remission. I will be on six-monthly PSA tests for another two years and, if all remains as it is, move to annual tests until I am 10 years post treatment. By that time I'll be 83!
I hope that helps.
Thank, Brian. Just looked at the info and will look at oncology letter to see if it says anything about blasting the lymph nodes! I hope your last 4 days go smoothly. Your ‘doing time’ (for want of any other description) seems to have gone very quickly! Well done!
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