Prognosis poor

Tina,

So sorry to hear about your husband.  Have faith and try to keep strong for him.

Hopefully something will start to improve.  Have they put your husband on Blood-thinners?  I am on Apixiban and that put a spanner in the works.

There are a lot of good people in this forum, hopefully someone else will identify with your husband's condition and can offer advice from their experiences.

Hi

Not the best news you want to hear, we who have stage four, know about bone mets, they can be a devil, as Stevecam said others may suffer with certain medication not working, but if your team is trying all they can, I’m sure they will exhaust every avenue before nothing will work.

Has he had radiotherapy? 
stay safe 

Joe

No radiotherapy has been mentioned,  yes hopefully something will turn up but unfortunately he has a rare type of pc so very difficult to trest, yes he's on blood thinners,  all we can do is hope 

I'm sorry to hear about your husband, radiotherapy helped me, and there are other treatments they will try, I hope they find the right mix of treatments soon.

All the best Ulls 

Thank you so much 

Well we're all stuck on this crap merry go round together, support is not an option, it's a necessity.

I've had my dark days so I know what it feels like.

All the best Ulls 

Ulls, Tina,

Even support from the other Group members helps.  It can lift you, even on the bad days.

Hi Tina 

How old is the Mr?

What types of things are you still able enjoy together, is Mr Tina still up n about?

Unfortunately he's in loads of pain so can't do much really?  So sad ,he's 60 , got no choice just to accept it all 

He is to young for this crap to have happened, but your right, we just have to put up with it until someone comes up with something new, we live in hope