Prognosis poor

At hopeless times, look for faith in things that help.

Open the curtains read books, keep engaging music on, ask him questions he wants to ask.

Get him to vent or talk on the other forum 

Ulls suggested the 'incurables'.

When I can't find hope. For me acceptance on some things is helpful, faith in other things helps and just focussing on this day only...

My partner will be ok

my kids will be ok 

It will be ok 

Just for this day the sun shines, my kids are happy, the bills are paid.

Maybe tomo something turns up??? But for today, I'll drink my pomegranate juice, take the tablets, eat the manuka honey,

Dark times, keep talking...

That the way, we can't make any better of our situation, but we can hope for future treatments, but till then, we have family and friends, shove the C to the back of your mind, enjoy life to the full

All the best Ulls 

Your posts are really helpful. Thanks

Hi Tina 22,

my husband also has a rare ductal adenocarcinoma. Stage 4 advanced… I feel your pain so much… he is stable for now and I’m grateful for that. A year in and I’ve started therapy for the anticipatory grief. Who knows what the future holds but I’m sending you positivity and hope and the many blessings in the here and now.

May I ask what type of rare pc your partner has?

love,

Louli

Louli,

I know my situation is nothing like yours, but the therapy should help.  I had a few months of counselling after my Radiation treatment last year.  By the end of this, my counselor reckoned I was a different person.

It really did help me (it was through a charity called 'Coping with Cancer').  I am a lot stronger mentally than ever.  Just this time last year I couldn't talk to anyone about the Cancer, or admit to myself when things were going wrong.

I can read from your posts how much you love your husband.  This love will help your husband, no doubt about that.

On a bad day, this can make all of the difference.

All the best to both of you. 

Sometimes people forget about the wives and partners, what they may be going through.  I try not to, I know that my partner made a difference to me.  If the roles were swapped I'd be there for her in an instant.

Hi Tina

we are all here with you, hoping that things get better, chemotherapy can throw up some assorted side effects, I’m sure the team he’s with will keep trying, a lot of us stage four have it in our pelvis including me, it’s getting his PSA down to a manageable level, keep talking to us and let’s hope he gets through this.

Stay safe

Joe

Hi Steve, thank you for your kind message. Yes we go through hell at times. Something in between having a time bomb in your pocket and dreading a life on the other side. 
Yes I do love that man of mine and thank you for noticing…. I love that!!

with love from,

Louli

Hello louli

Your situation is a very distressing one for both of you. Your OH for battling this disease and you watching helplessly, it’s a terrible thing.

To myself wives and partners bare the brunt of everything, they see things on a daily basis what others see once and a while, it’s completely unfair how this affects those we love, although I’m getting slower and my wife can see this, not many people understand, they see me and say doesn’t he look well. 
Our hearts go out to both of you, these are trying times, your love for your hubby is a credit to you, my wife and I hope there’s some new medication just waiting to be tried, good luck to you both.

Stay safe

Joe

Thank you so much Joe… it will be a year since we found out next month so that’s something to celebrate. We honestly didn’t know if we would get this long. I’m hoping for years too… like we all are. 
He is an absolute darling!!

sending you and your wife love in the millions!

Louli

Not sure but said as testosterone low but psa climbing just said he has a rare form of cancer ,-I'm waiting on counselling as I'm struggling to deal with it ,on top of things I lost my beloved pet this week,been awful week as well as my oh going to hospital for a blood clot