Dear all
great relief to see there is an under 50’s threat
I am devoted wife of 48 year old just diagnosed. Stage T3a. Gleeson 7 (3+4) boarderline 8 (4+4) high cribriform seen and nerve invasion. Luckily no metastasis. Such a shock. PSA of 12.5 picked up in routine gp blood test. No family history and first visit to GP in 15 years
Radical prostatectomy next Thursday.
Any practical hints or tips for first few weeks post surgery. Do you need pads during first week or is that after catheter is removed. I heard you shouldn’t even lift a kettle for first few weeks. How quickly did you feel like going for a walk to get fresh air? We’re you in a lot of pain? Is night shirt best (to avoid things pressing on tummy / wounds) or just pyjamas?
any tips from those who have had radical prostatectomy very welcome
many thanks
wigs
Don't be worried about pissing yourself. It'll be good pracitce for when you get old.
Seriously take a wide necked receptacle. Or google B roads or pubs along the way.
I know it's scary but it isn't.
Dennis I’m petrified the thought of being driven home after all these exercises to then have no control. I thought as it started to happen you would be able to stop the stream. I know it’s a sensitive subject but it’s making me think maybe I should book into a hotel the day of the catheter coming out!
TC
Sorry I missed your last two posts. I'm on a special diet (single malt and keema madras) and I overdid the former last night.
Catheter was in for two weeks. It did make everything a little difficult. Sleeping and showering and stuff. The episode in the car: I should've asked my wife to find the nearest loo but I thought I could last until we got home.
Sometimes I leak a little when lifting something or coughing. Apart from that I'm perfectly continent. And that's been the situation since day one.
It's easy for me to say because I'm five years down the line but don't be afraid.
Good luck.
Hi Wigs,
Hello well I’m in exactly the same place as my was taken out four weeks ago. I can’t stress enough the need to keep doing the exercises as it’s the only thing that stops the leaks. It is so very for me also as a man as you feel less masculine. Yet Im assured it takes time! Happy to chat things through with you
Hi TC
Thanks so very much for replying, it's nice to get your perspective, and so nice to talk to someone. We've been told it takes time too, up to 2 years apparently to possibly gain some function ED if at all! , at which point he nearly fell of his chair. We have another appointment at the hospital in 2 weeks and the black cloud is starting to loom over him again. It's the after affects of this that no one is prepared for. Keep me posted on how you're getting on.
Well it’s a very sensitive subject and I don’t want to offend you! This was my huge concern and I was told of improvements either surgery or viagra. Again not to offend but for me I need a lot more help from my partner as what used to be a automatic response now needs far more imaginative thoughts to get to the same pace as quickly. Then again not to embarrass he will still have an orgasm but it won’t be something for you to witness externally which had really upset me. It needs you both to repair together and believe happy days are ahead
Hi, TC my gosh thank you so much for that, that is exactly the sort of thing I needed /wanted to hear, I think at this point I am far from being offended by anything, in fact it's something no one really talks about, so thank you so much for your honesty. He is definitely concerned big time. I guess we have to get used to the transition together. Thank you.
Well Lizzy I know impulse is or was normal but now things are very different. A woman is used to wearing pads and as men we know to stay clear once a month. So my first challenge was to find a pad. Unfortunately men don’t have the same choice and one fundamental problem which is the polythene base on the cheaper ones.,This causes a problem as it creates heat and if dribbling snarls! So I use tena protective shield. Up until I was confident I used Asda which coped with accidents but never severe. So unlike women pads are don’t smell nice so after heat and dribbles it can smell. Now to something very sensitive when your ready it’s so important he goes for a wee first and washes preferably shower. I made a mistake as at the point of ejaculation urine came out under the same pressure that seamen used to. I have since found out that little preparation means nothing comes out and you remain completely dry. So ky jelly is the new lubricant. Try and treat is as an adventure to find out what works and you have to be open to making changes. So it will happen but there are some simple things to prevent embarrassment. Again I share this simply because no one helped me
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