Hi
Apologies for being offline for a while, I went for robotic laparoscopic surgery on 27th May, as I wanted the cancer out, surgeon got the gland out intact apparently, so fingers crossed no nasties escaped for the future. Have been sore and tired but getting easier daily, staples coming out tomorrow and the dreaded catheter out Tuesday. My attention has turned to post TWOC and getting back control of flow etc, prior to op I was using the squeezymen app to do pelvic floor exercises, I can highly recommend the app if like me you need reminding to do the exercises! Not done any since the catheter went in but intend to restart once it’s out. So that’s my question, any good tips re post catheter control being regained, I have to be honest I’m a bit worried about incontinence moving forward, is it constant dribbling or occasional stress leakage? I have got stock of Tena Active Men pants which should prevent embarrassing leaks but don’t want to be wearing them forever. Any positive tips would be much appreciated. Jon
Hi Jon
When I had my catheter out, I just had stress incontinence. Pre op, I had an appointment with a urology nurse to start the pelvic floor exercises and started using the app.
Definitely think that helped with the post op recovery. Never had to use the pads, just used Boots men's shields inserts.
Improvement was steady and done the pelvic exercises every day. Post op I had about 70% continence. After 6 months, back to 100%
Very occasionally, can have a very small leak these days. Nurse told me when I had the catheter out, I had a year to get back to normal so made sure I done my exercises.
Hi jbat. Before my op I became obsessed with pelvic floor exercises. I’ve been really fortunate that after TWOC I’ve never needed any pads or shield guards. I was continent straight away. My op was aug20 2025. I believe that doing all the exercises helped although on reading I think it can be the skill of the surgeon as well and pretty much luck of the draw. Nearly a year on I have odd moments on leakage although these seem to coincide with a trip to Wetherspoons On the ed front. I use tadefil 5 mg every day and have recently started having some nocturnal erections ( 18 months ago I didn’t think I’d ever write that on a forum ). Hope this helps and good luck going forward. Cheers. Simon
Hi Jon,
I am post op 14 weeks and like you used the Squeezy app before surgery. In my case I had a lot of aggravation with the catheter so when it was taken out the level of incontinence came as a bit of a shock and a bigger impact than I expected. The first few days I was using multiple pairs of the pants per day. Even though the first few days were harder than I expected it does soon calm down. There is also some muscle memory from the work you have done pre surgery so that will help your improvement. Keep drinking at least 1ltre and a half and that will help.
I stopped using the 'pants' within a week or so and was soon just using the pads and I was dry through the night within days. I found that I had bigger improvements at about 8 and 12 weeks and now use the lightest pad I can, even when active. If anything it is my phycological confidence that is holding me back.
If you are anywhere near Milton Keynes I have loads of the level 3 tenor pads left, happy to pass them on.
Good luck and reach out if you need anything.
Gareth
Hi JBat I had my op on March 12th. Three months in I am 99.9% back to normal. The 0.1% is occasional and minor leakage if I really exert myself but having said that I walk my dog daily, and a gym membership through my local cancer charity and I've not had a single issue. When my catheter came out it was a case of getting used to a different sensation of urinating. I wore pads for a week to 10 days but more as an insurance. I used the Squeezy app religiously pre-op and have continued post-op. I figured if I'm going to the gym another form of exercise wouldn't hurt. Like you my biggest fear was incontinence but it was unfounded. I sleep through the night - as I did previously and feel that my worries were soon diminished. I'm perfectly happy with my journey. My PSA was 0.01 post-op with my next test in July. On the back of my experience I'm taking flexible retirement. Stuff working til 67 after the last year. I appreciate things more and don't sweat the small stuff. The thing that struck me is I had to go through the PC process to make the decisions and changes.
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