Good evening all,
Husband is on 4th day of 20 sessions, a little fatigue to be expected… but he also has cystitis kicking in and a few sty’s around the eye, any recommendations of what could ease either or? Does he need to report side effects when back on Monday or is this just a part of the package?
he is already feeling miserable after 2nd HT injection, that’s brutal on him (though the excellent advice given here I think it was from worried wife to say to the nurse not to shake the vial worked an absolute treat - reduced the initial tummy pain massively so thank you!!)
jeepers, PC. just seems to bring something new each day with it…
apart from a good diet and exercise when he can manage it, are there supplements or anything else anyone has found to be helpful to try and make this road a little less bumpy for him?
our little girl has noticed he isn’t at full health, it’s very hard to watch a big strong man slowly become weak, snappy and generally feel under power
thanks so much for taking the time to read this
Hello Bear
You should report any side effects to your radiologist. They will be able to offer advice and help.
I've never heard of stys around the eyes being a problem if radiotherapy, but I have encountered the same problem in my younger days (a long time ago) when my body's reserves were generally run down.
Your suggestion of eating properly and food supplements is good. Is he taking Calcium and Vitamin D supplements? They are recommended because the hormone therapy reduces them.
One of the things I have found hells is some called "pacing". Acknowledge that energy is reduced and plan for it. Build in rest periods for anything he is going to do.
Somewhere in there is a rhythm that will help.
You can also talk to the team on the Macmillan helpline on this number - 0808 808 00 00.
Read all you can about supporting someone with a chronic illness, even if that is not directly for cancer sufferers.
For example, you can find out a lot of ideas about pacing, and dealing with chronic fatigue, on the website "Action for ME".
They don't know anything about cancer but boy, have they got good advice on dealing with fatigue.
I wish you well.
Steve
Changed, but not diminished.
Hello Bear
I am with Steve (mstev2 ) here. ANY changes to his health, daily routine or changes in his body's function need reporting to the Radiotherapy team at his next fraction.
There are supplements out there but we are all different and react to them in different ways. Before taking any you need to clear it with his medical team as you don't want a "medication clash". Apart from the Calcium/Vitamin D the only "supplement" I take are sage tablets which have cured my hot flushes.
He will get used to the "new normal" but it does take time to adjust to all the side effects.
jeepers, PC. just seems to bring something new each day with it…
as someone posted last year
"Prostate Cancer - the gift that keeps on giving" - how true.
Best wishes - Brian.

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