Prostate

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Morning all any advise please I have prostrate cancer Gleason 6 18 cores 15 cancer had testerone injections stopped now for 15 months psa dropped from 6 to 3 testerone was 52 now 8 but mri just showed a lision on right side anybody else had this 

  • Not directly.

    The new lesion should always be investigated. 

    What have your doctor 's recommended as a result of the MRI?

    Steve

    Changed, but not diminished.
  • I have been on to them they offered me a telephone appointment 25th may to which I said not happy my 3rd bout of cancer don’t know what to do now 

  • Thank you.

    I am a bit stuck on knowing what to say, because there is not a full profile for you.

    You can find instructions on how to do that here -  How do I edit my profile? 

    If you put in your history from the start of your illness there are many people who might have a similar experience and can help.

    Steve

    Changed, but not diminished.
  • I think I’ve just done that 

  • Hello  

    Thank you for the history of your journey.

    I think in the circumstances - this is your 3rd cancer diagnosis - you need a face to face appointment to discuss where you are and what help/treatment paths are open to you.

    I would be calling the hospital tomorrow to change the appointment - tell them of your history and anxiety. If you don't have any help from them contact the hospital PALS office (Patient Advice and Liaison Service). Ask them to arrange a face to face for you.

    Best wishes - Brian.

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  • Gleason 6 is a benign form of disease and is most commonly watched rather than treated. I'm surprised you are discussing radical treatments such as surgery or radiotherapy at this stage.

    Treatment may leave you with life long side effects so don't rush into it.

    Hope things work out for you.

    Rob (Sandberg)

  • ihad biopsy last year 18 cores 16 are positive cancer 

  • I'm with Brian in this.

    They need to say why Active Surveillance is all they recommending - not to change your mind, but so that you are really clear why this is right FOR YOU.

    As an example, if the lesions have built up within a year, you have a problem. If it is 20 years, then not so much.

    Gleason 6 is very slow growing, if at all, so you have time. Certainly you have time to really think this through, and possibly even discard the idea of treatment at all. Given your history though, any recommendation made has got to be so thoroughly explained that you have confidence again.

    Keep on at the hospital so that they will see you face to face.

    Explain what you need, and then, politely, insist.

    Get PALS involved if necessary.

    Quietly, but firmly, push for what you need.

    Steve

    Changed, but not diminished.
  • Thanks left message today politely requesting face to face if no response I will try pals